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Unexplained toe and feet pain?

A MyLupusTeam Member asked a question 💭
Wesley Chapel, FL
September 27
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MyLupusTeam

Toe and foot pain is actually really common with lupus — studies show that up to 77% of people with lupus experience foot pain at some point, and many say it significantly impacts their daily life. A MyLupusTeam member shared, "My feet feel like I'm walking on glass whenever I walk." So you are definitely not alone in this!

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Toe and foot pain is actually really common with lupus — studies show that up to 77% of people with lupus experience foot pain at some point, and many say it significantly impacts their daily life. A MyLupusTeam member shared, "My feet feel like I'm walking on glass whenever I walk." So you are definitely not alone in this!

There are several lupus-related reasons this can happen:

- Arthritis — About 95% of people with lupus develop arthritis or joint pain, which commonly affects the small joints in the feet and toes
- Raynaud's phenomenon — A lupus-linked condition where blood vessels narrow, causing coldness, numbness, tingling, or discoloration in the toes
- Peripheral neuropathy — Nerve damage caused by lupus that can create pain, tingling, or unusual sensations in the feet
- Chilblain lupus — A rare skin form of lupus that causes painful sores on the feet and toes, often worsened by cold or damp conditions
- Medication side effects — Some lupus medications, like prednisone, can cause swelling and puffiness in the feet and ankles It's really important to talk to your doctor about any foot or toe pain, swelling, sores, or circulation issues. Once the underlying cause is identified, a treatment plan can be put together to ease symptoms. Your doctor may also refer you to a podiatrist (a foot specialist) for more targeted care.

In the meantime, some general tips that may help:

- Wear warm, comfortable socks (especially if coldness or Raynaud's is a factor)
- Try compression socks if swelling is an issue
- Avoid sudden temperature changes
- Keep up with basic foot care like nail trimming to prevent further discomfort

September 27
A MyLupusTeam Member

Yes, I’ve had feet problems as well. I don’t know if your case is Sjogrens, arthritis or something else. Many times my heels would be inflamed and I felt as if the was walking on knobs. Sometimes the bones in my feet would ache. The best thing you can do is talk to your rheumatologist. Keeping my feel warm has helped. Although it could be neuropathy.

September 27
A MyLupusTeam Member

I get neuropathy and numbness in my toes, especially at bedtime. I plan to talk more with my doctor about it when I see him in November.

October 7
A MyLupusTeam Member

I have it.

October 7
A MyLupusTeam Member

I have neuropathy in the first three toes on each foot. It isn't fun. I exercise my feet best I can.

September 29

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