I think I probably should have started with a lower dose but I've seen 3 rheumatologist now and I just want to feel better. The first one gave me nothing just a copy of my visit and come PRN. The second one gave me 200mg. I read the side effects and got a third opinion and he said take 300mg. So maybe he hit it too hard. I do feel better but that diarrhea is not going to work.

I take my hydroxychloroquin at night ...200 mg only...my doctor wanted me to take 300 mg ...tried for a week, but it hurt my stomach and I just felt sick. So I'm staying with the 200 mg. I also have the IBS...Lomotil has worked for me. Hope you start feeling better! Take care.

We are kinda in the same boat. Same dosage instructions and I still haven't decided what Dr I'm gonna stick with so I see two as well. Praying for you too.

Well unfortunately I've spent the last 3 hours in the bathroom...never know when something I eat will make my stomach explode. Gosh I'm just so tired of all this! Anyways I wanted to say I'm presently seeing 2 different Rheumatologist ... I'm hoping one of them will find a medication that helps me. Besides lupus, I also have Rheumatoid Arthritis,Crest syndrome, and now being told scoliosis too. I do understand when you say you're falling apart. Praying for us both to get the help we need! Take care... God Bless ❤️

See I went to 3 different Drs and the first one wanted me to do I think 200 mg. When I went to the second one last week he said 300 mg. And since they don't make that I alternate but the bowel and gut stuff can't work. I do think I feel a little better since I started it but I am worried about my vision. I already have anxiety insomnia high BP high cholesterol migraines thyroid meds. Oh and the Bentyl and Lomotil. I'm falling apart. I do feel like if I can start feeling better and stop this bathroom thing man id be heading back to myself. Thanks for reaching out. We know what it's like. I don't have anyone to talk to about this except a coworker and I had a cousin that died from lupus. So I'm trying my best. Thanks y'all.