It takes me a couple of hours to get warmed up I usually have to put warm packs on my hands
5 days ago
@A MyLupusTeam Member, Are you anemic? Just curious...
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A MyLupus...
4 days ago (edited)
Feeling deeply cold and struggling to warm up is something many people with lupus experience. One MyLupusTeam member shared, "Mornings are the worst. It can take up to three hours for me to get somewhat warm." There are a few lupus-related reasons this can happen. Here are some possible causes to be aware of:
- Raynaud's Show Full Answer
Feeling deeply cold and struggling to warm up is something many people with lupus experience. One MyLupusTeam member shared, "Mornings are the worst. It can take up to three hours for me to get somewhat warm." There are a few lupus-related reasons this can happen. Here are some possible causes to be aware of:
- Raynaud's phenomenon — A condition linked to lupus where blood vessels constrict in response to cold or stress, reducing blood flow and causing coldness, numbness, or discoloration, usually in the fingers or toes
- Anemia — Lupus can attack red blood cells, making it harder for blood to carry oxygen around the body, which can leave you feeling cold
- Hypothyroidism — An underactive thyroid is more common in people with lupus and can slow metabolism, causing chills and sluggishness
- Hypothermia — Rarely, certain medications (including high-dose corticosteroids) or lupus affecting the hypothalamus (the brain's temperature regulator) can make it hard to stay warm It's worth tracking when these cold sensations happen and sharing any patterns with a doctor. If the coldness comes on suddenly on one side of the body and is paired with confusion, dizziness, or difficulty speaking, seek emergency care right away as these can be signs of something more serious.
In the meantime, dressing in warm layers and avoiding sudden temperature changes can help manage day-to-day coldness.
5 days ago
I am anemic and have hypothyroidism. I am always cold. It hurts so bad to be cold
5 hours ago
Yes. Family thinks it's funny that I wear my robe with hoodie around the house while it's 72 degrees, I know that the coldness in my legs is due to PAD, but the rest of me is constantly cold. Lord knows we all have so many issues. And most are from lupus. I pray for just 1 day to be normal. JUST ONE!!!
10 hours ago
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