That sounds like a really tough experience — dealing with fluid retention, a catheter, and then bladder issues on top of managing lupus nephritis is a lot to go through.
Fluid retention (edema) is a well-known symptom of lupus nephritis, happening when the kidneys aren't filtering properly and fluid builds up in the body Show Full Answer
That sounds like a really tough experience — dealing with fluid retention, a catheter, and then bladder issues on top of managing lupus nephritis is a lot to go through.
Fluid retention (edema) is a well-known symptom of lupus nephritis, happening when the kidneys aren't filtering properly and fluid builds up in the body. Frequent urination or changes in urination patterns are also common with lupus nephritis. A MyLupusTeam member shared something similar, noticing irregular urination patterns — barely going some days, then going continuously and losing a lot of fluid on others, describing it as a regular occurrence.
A few things worth discussing with your care team:
- Bladder changes after prolonged catheter use can happen and are worth flagging with your urologist
- Kidney function monitoring through urine and blood tests can help track how lupus nephritis is affecting things
- Medication review — some lupus medications can affect bladder and kidney function
It's really important to loop in both your rheumatologist and nephrologist so they can look at the full picture together. You deserve answers and a plan that addresses all of this, not just parts of it.
3 days ago
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