Chronic illness is not well understood. Despite lupus affecting five million people worldwide, most people are not familiar with it and how it affects us day to day. Those closest to us may not understand the ups and downs of symptoms that come and go, like fatigue and pain. It can be difficult to have friends or family question why we do not "get better."
On MyLupusTeam, the social network and online support group for those living with lupus, members talk about a range of personal experiences and struggles. Getting others to understand is one of the top topics most discussed.
Here are some question-and-answer threads about getting others to understand :
Here are some conversations about getting others to understand:
Can you relate?
Have another topic you'd like to discuss or explore? Go to MyLupusTeam today and start the conversation. You'll be surprised just how many others may share similar stories.
Feel free to ask a question here.