Sign up for this email series:
Living with lupus may change your holidays, but you can still have enjoyable and meaningful celebrations. Although lupus may make some holiday traditions challenging, it doesn't mean you can't enjoy connecting with friends and family during the holiday season.
By communicating your limitations due to lupus, being flexible, and adjusting your expectations, you can help make sure the holidays are happy and memorable.
Communicate Your Needs
Let your loved ones know that connecting with them over the holidays is as important as ever to you, but lupus is making it hard to plan because you don’t know if you’ll feel unwell on a given day. Stress can trigger flares for some people with lupus. You need to put your health first or risk worsening your condition.
Instead of saying "no," say "yes" to something else. If a family tradition no longer works for you since you developed develop, it may be time to suggest an update.
If it's just not possible to get together in one place this year, consider using a video chat service such as Skype, Zoom, or FaceTime to have a special holiday call on a smartphone or laptop. During a video chat, you can:
Adjust Your Expectations
Even without a chronic illness like lupus, holidays often come with high expectations that lead to disappointment and stress. Letting go of the illusion of a "perfect" holiday can help you keep expectations realistic and focus on what's most important about the holidays. For many people, that means connecting with loved ones, being thankful for what you have, and finding hope for the new year.
Here are some mindful tips from Johns Hopkins Medicine for adjusting holiday expectations:
During the holidays and year-round, the members of MyLupusTeam are here for each other. Joining MyLupusTeam means gaining a support group of thousands of others with lupus who understand exactly what you're going through.
Here are some conversations from MyLupusTeam members about navigating the holiday season with lupus:
Have you found ways to celebrate the holidays despite lupus?
Share in the comments below or post on MyLupusTeam.