Insomnia and Lupus

Insomnia is a frequent challenge for people with lupus. Discomfort from lupus symptoms, medication side effects, and symptoms from co-occurring conditions like fibromyalgia can all cause sleep disturbances.

Sleep problems are especially frustrating when quality rest is critical for preventing lupus flares and managing the extreme fatigue that is so common among people with lupus.

Your doctor can help you determine the cause of your sleep troubles - some members of MyLupusTeam were diagnosed with sleep apnea after consulting their healthcare providers - and prescribe treatments as needed.

In addition to prescribed sleep aids, members of MyLupusTeam shared the following tips for improving sleep.

• Soothing sounds: “I sometimes do the bedtime sounds. Stormy weather and rivers put me to sleep pretty quickly.”
• Relaxing activities: “I sometimes will do knitting or other crafts.”
• Aromatherapy: “I've been using an aromatherapy diffuser. It seems to work and at least allows me to be more relaxed and rested even if I do find myself lying awake with insomnia.”
• Medical marijuana: “I now take medical marijuana with THC in it. I wake up feeling like a human.”

Members also found meditation, hot baths, reading, and drinking herbal tea helpful for falling asleep. While some members of MyLupusTeam reported that melatonin helps them sleep, it is generally not recommended for people with lupus.

On MyLupusTeam, the social network and online support group for those living with lupus, members talk about a range of personal experiences and struggles. Insomnia and trouble sleeping are one of the most discussed topics.

Do you have trouble sleeping? What do you do to improve your rest? Share your insights in the comments below or directly on MyLupusTeam.

Here are some conversations about sleep problems:
 

• “Haven’t been sleeping much at night.”
• "I have insomnia but when I do fall asleep I have terrible nightmares."

Here are some question-and-answer threads about sleep problems:
 

• Ideas?
• Has anyone experienced sleeping but still conscious?
• I'm always tired but can't sleep
• What methods do you use to help you fall asleep and stay asleep?
• Prednisone Insomnia

Do you have trouble sleeping? What do you do to improve your rest? Share your insights in the comments below or directly on MyLupusTeam.