... As always, we’re sharing the findings of our research with the MyLupusTeam community. You can see highlights of the survey results in the slides below. Have you tried online doctor visits? How was your telehealth experience? Leave a comment below or start a conversation on MyLupusTeam. ...
... “The results from the survey appear to confirm that the impact of lupus is far-reaching — both the physical and emotional aspects,” said Beth Schneider, senior director of research with MyLupusTeam. ...
... Almost all MyLupusTeam members who have systemic lupus erythematosus experience fatigue or tiredness, and painful and swollen joints.Almost all of those with cutaneous forms of lupus report rashes or lesions (sores) on their skin, fatigue and skin sensitivity.Read more about common skin symptoms MyLupusTeam members have experienced.What have been the ...
Symptoms That Affect MyLupusTeam Members the Most
... Almost all MyLupusTeam members who have systemic lupus erythematosus experience fatigue or tiredness, and painful and swollen joints.Almost all of those with cutaneous forms of lupus report rashes or lesions (sores) on their skin, fatigue and skin sensitivity.Read more about common skin symptoms MyLupusTeam members have experienced.What have been the ...
... Hair loss and scarring are both symptoms that affect how members feel about themselves. One member who’s experienced both shared, “I now have two bald spots on my head. I have been losing my hair since being diagnosed with lupus. Looks like it’s a permanent loss, as I was told my scalp is scarred. ...
Skin Symptoms That Affect MyLupusTeam Members the Most
... Hair loss and scarring are both symptoms that affect how members feel about themselves. One member who’s experienced both shared, “I now have two bald spots on my head. I have been losing my hair since being diagnosed with lupus. Looks like it’s a permanent loss, as I was told my scalp is scarred. ...
... Review the slideshow below to see more about what other people with lupus are experiencing. Please post your questions and share your tips for dealing with some of these challenges. As always, we welcome your feedback, questions, and comments. Research: Living with Lupus from J. Michelle Cox ...
... Members of MyLupusTeam responded to our survey to share how they are affected, and what matters most to them in lupus. What lupus symptom has had the biggest effect on your life? Share with other members in a comment below. ...
Lupus and Race: What Matters to MyLupusTeam Members
... Members of MyLupusTeam responded to our survey to share how they are affected, and what matters most to them in lupus. What lupus symptom has had the biggest effect on your life? Share with other members in a comment below. ...
... On MyLupusTeam, more than 233,000 members come together to ask questions, give advice, and share their stories with others who understand life with lupus.How does lupus impact your general health or emotional health? What advice do you have for others living with this chronic disease? ...
Can Lupus Impact Quality of Life? Insights From Those Who Have It
... On MyLupusTeam, more than 233,000 members come together to ask questions, give advice, and share their stories with others who understand life with lupus.How does lupus impact your general health or emotional health? What advice do you have for others living with this chronic disease? ...
... Share your tips and experiences in a comment below, start a conversation on your Activities page, or connect with like-minded members in Groups. ...
... There’s no right or wrong way to build your team — it’s all about what feels right for you. 7. How do I add others to my team? ...
Getting Started on MyLupusTeam
... There’s no right or wrong way to build your team — it’s all about what feels right for you. 7. How do I add others to my team? ...
... Using this feature will help you stay up to date with how your team is doing.There are no limits to adding to your team. Continue to add members to your team as you like!Still have questions? Here are some helpful FAQ articles to help maintain your team:What is a team?How do I add someone to my team?Other questions? ...
Get the most out of MyLupusTeam by tailoring your own team!
... Using this feature will help you stay up to date with how your team is doing.There are no limits to adding to your team. Continue to add members to your team as you like!Still have questions? Here are some helpful FAQ articles to help maintain your team:What is a team?How do I add someone to my team?Other questions? ...
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