MyLupusTeam has committed to sharing members’ experience with lupus back with the MyLupusTeam community. MyLupusTeam conducted a survey with 308 members diagnosed with lupus, including either systemic lupus erythematosus (SLE) or cutaneous forms of lupus (meaning lupus that affects skin).

The impact lupus has on quality of life is significant. Almost all MyLupusTeam members who have systemic lupus erythematosus experience fatigue or tiredness, and painful and swollen joints.

Almost all of those with cutaneous forms of lupus report rashes or lesions (sores) on their skin, fatigue and skin sensitivity.

Read more about common skin symptoms MyLupusTeam members have experienced.

What have been the worst symptoms that you experience? What do you find helps you the most?