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Uncovering Lupus Symptoms Beyond Fatigue and Joint Pain

Posted on September 23, 2019

MyLupusTeam is committed to sharing members’ experience with lupus back with the MyLupusTeam community. MyLupusTeam conducted a survey with 308 members diagnosed with lupus, including either systemic lupus erythematosus (SLE) or cutaneous forms of lupus (meaning lupus that affects skin). This survey asked about life with lupus, including their specific diagnoses and their symptoms. Here’s what members said:

Read more about common skin symptoms MyLupusTeam members have experienced.

What have been the worst symptoms that you experience? What do you find helps you the most?

A MyLupusTeam Member said:

I have all of these symptoms so I have a lot of empathy towards you. Have you been given a reason as to why you legs, ankles and feet swell? I have got to the stage where I can't even wear shoes for… read more

posted about 1 month ago

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