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MyLupusTeam is committed to sharing members’ experience with lupus back with the MyLupusTeam community. MyLupusTeam conducted a survey with 308 members diagnosed with lupus, including either systemic lupus erythematosus (SLE) or cutaneous forms of lupus (meaning lupus that affects skin). This survey asked about life with lupus, including their specific diagnoses and their symptoms. Here’s what members said:
Read more about common skin symptoms MyLupusTeam members have experienced.
What have been the worst symptoms that you experience? What do you find helps you the most?
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I Need To Lose Weight But Even When I Try To Get Out And Walk My Hips And Lower Back Kill Me For Days Afterwards To Feel Better! I Take Ibpr
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My worst is my neck and back. I also have burning and shooting pain all over my body that is constant and I just want to scream, but I just hang on
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