Connect with others who understand.

sign up log in
About MyLupusTeam

Uncovering Lupus Symptoms Beyond Fatigue and Joint Pain

Posted on September 23, 2019

MyLupusTeam is committed to sharing members’ experience with lupus back with the MyLupusTeam community. MyLupusTeam conducted a survey with 308 members diagnosed with lupus, including either systemic lupus erythematosus (SLE) or cutaneous forms of lupus (meaning lupus that affects skin). This survey asked about life with lupus, including their specific diagnoses and their symptoms. Here’s what members said:

Read more about common skin symptoms MyLupusTeam members have experienced.

What have been the worst symptoms that you experience? What do you find helps you the most?

All updates must be accompanied by text or a picture.

Related articles

A lupus diagnosis can significantly impact quality of life and how you perform daily activities....

More Than Half of MyLupusTeam Members Surveyed Are Not Satisfied With Their Doctors

A lupus diagnosis can significantly impact quality of life and how you perform daily activities....
The impact lupus has on quality of life is significant. MyLupusTeam conducted a survey with 308...

Skin Symptoms That Affect MyLupusTeam Members the Most

The impact lupus has on quality of life is significant. MyLupusTeam conducted a survey with 308...
MyLupusTeam has committed to sharing members’ experience with lupus back with the MyLupusTeam...

Symptoms That Affect MyLupusTeam Members the Most

MyLupusTeam has committed to sharing members’ experience with lupus back with the MyLupusTeam...
Lupus is a disease that affects African-American women at a much higher rate than any other...

Lupus and Race: What Matters to MyLupusTeam Members

Lupus is a disease that affects African-American women at a much higher rate than any other...
We surveyed MyLupusTeam members about what they hope to see in future lupus treatments. Answers...

4 Things People With Lupus Want To See In New Treatments (Infographic)

We surveyed MyLupusTeam members about what they hope to see in future lupus treatments. Answers...
Life with lupus can mean a whole lot of symptoms, including skin symptoms. We asked...

Lupus and Skin Symptoms (Infographic)

Life with lupus can mean a whole lot of symptoms, including skin symptoms. We asked...

Recent articles

If you’re living with lupus, you’re already aware of the impact the condition can have on your...

5 Ways To Get Involved With Lupus Awareness

If you’re living with lupus, you’re already aware of the impact the condition can have on your...
Dating and relationships aren’t always easy, especially when you add lupus to the mix. If you’re...

Relationships and Lupus

Dating and relationships aren’t always easy, especially when you add lupus to the mix. If you’re...
With lupus, the immune system attacks healthy cells anywhere in the body. When lupus attacks the...

Lupus Nephritis Diet: What To Eat and What To Avoid

With lupus, the immune system attacks healthy cells anywhere in the body. When lupus attacks the...
About half of adults with lupus will develop lupus nephritis, a kidney condition that affects...

What Is Lupus Nephritis?

About half of adults with lupus will develop lupus nephritis, a kidney condition that affects...
Treatments for lupus nephritis aim to prevent further kidney damage. Many kinds of medications...

Lupus Nephritis: Treatments

Treatments for lupus nephritis aim to prevent further kidney damage. Many kinds of medications...
The symptoms of lupus nephritis are associated with the kidney damage that occurs during the...

Lupus Nephritis: Symptoms

The symptoms of lupus nephritis are associated with the kidney damage that occurs during the...
MyLupusTeam My lupus Team

Thank you for signing up.

close