Connect with others who understand.

sign up log in
About MyLupusTeam

4 Things People With Lupus Want To See In New Treatments (Infographic)

Posted on December 04, 2016

We surveyed MyLupusTeam members about what they hope to see in future lupus treatments. Answers fell largely into four categories. Members hope new treatments will reduce pain, have fewer side effects, decrease fatigue and sleeplessness, and prevent disease progression.

Treatment holds the elusive promise of reducing many of lupus' most difficult symptoms. Members told us that their lupus symptoms often made them unable to do everyday things and meant they were more likely to cancel plans and miss work. "Between pain, swollen joints and headaches it can make it almost impossible to function," one user said. Another user said, "I get tired when doing basic things like cleaning my house, folding clothes and going to work." Users hope for new lupus treatments which will alleviate the relentless pain, fatigue and sleeplessness of lupus.

Here's what you told us:

What lupus symptoms do YOU hope new treatments will address?

A MyLupusTeam Member said:

Same here. I dare not wear anything revealing my arms.

posted 11 days ago

hug

Recent articles

Mht covid19 essentialupdates carousel
During the COVID-19 pandemic, MyLupusTeam will provide summaries and links to articles of...

COVID-19 and Lupus Essential Updates

During the COVID-19 pandemic, MyLupusTeam will provide summaries and links to articles of...
Lupus and hydroxychloroquine %28plaquenil%29 shortages
Article written by Kelly Crumrin Medically reviewed by Jeffrey A. Sparks, M.D., M.M.Sc....

Lupus and Hydroxychloroquine (Plaquenil) Shortages

Article written by Kelly Crumrin Medically reviewed by Jeffrey A. Sparks, M.D., M.M.Sc....
Mht pressrelease infographic mylupusteam panel1 email copy
We recently asked 593 members of MyLupusTeam about their experience living with lupus. They...

The Results Are In: Anxiety and Depression Are Common Among Those Facing Lupus

We recently asked 593 members of MyLupusTeam about their experience living with lupus. They...
Mht mylupusteam covid19 carousel
Article written by Heather Lapidus Glassner Medically reviewed by Siddharth Tambar, MD The past...

Lupus and COVID-19: Are You At a Greater Risk?

Article written by Heather Lapidus Glassner Medically reviewed by Siddharth Tambar, MD The past...
Coronavirus
Article written by Kelly Crumrin Those of us living with pre-existing, chronic conditions such as...

Canceling Is Kindness: Keeping Safe From COVID-19 With Lupus

Article written by Kelly Crumrin Those of us living with pre-existing, chronic conditions such as...
Setting intentions for 2020 with lupus
Eat healthier. Exercise more. Learn a new skill. Pay off a credit card. Many of us have made...

Setting Intentions for 2020 With Lupus

Eat healthier. Exercise more. Learn a new skill. Pay off a credit card. Many of us have made...
Practicing gratitude with lupus
This time of the year can be overwhelming with expectations around the holidays, and living with...

Practicing Gratitude With Lupus

This time of the year can be overwhelming with expectations around the holidays, and living with...
How to enjoy the holidays despite lupus
Living with lupus may change your holidays, but you can still have enjoyable and meaningful...

How to Enjoy the Holidays Despite Lupus

Living with lupus may change your holidays, but you can still have enjoyable and meaningful...
Mht af justdiagnosed heavyset
We all respond differently to information about our health. After learning you have lupus, you...

You’ve Just Been Diagnosed With Lupus. Now What?

We all respond differently to information about our health. After learning you have lupus, you...
Mylupusteam carousel skin symptoms that affect mylupusteam members
The impact lupus has on quality of life is significant. MyLupusTeam conducted a survey with 308...

Skin Symptoms That Affect MyLupusTeam Members the Most

The impact lupus has on quality of life is significant. MyLupusTeam conducted a survey with 308...
MyLupusTeam My lupus Team

Two Ways to Get Started with MyLupusTeam

Become a Member

Connect with others who are living with lupus. Get members only access to emotional support, advice, treatment insights, and more.

sign up

Become a Subscriber

Get the latest articles about lupus sent to your inbox.

Not now, thanks

Privacy policy
MyLupusTeam My lupus Team

Thank you for signing up.

close