What are other people's experiences on getting pregnant/being pregnant with lupus nephritis? I would like to be off all kidney meds completely. I will still take plaquenil for flares, but I don't feel comfortable taking Imuran. Thoughts??
I'm 4 months pregnant and I'm not taking any mess my doctor asked me if I wanted to continue and I said no, I'm only taking the prenatal pills and so far im doing alright and my baby is healthy with a strong heartbeat. There are some mess you can take when your pregnant that helps you and the baby but you have to be very early in the pregnancy 6-10 weeks. I'm trying my best to do this pregnancy as natural as possible but some of the symptoms kick my butt for acouple of hours but then they'll fade away.
Personally, I don't think you should take anything while being pregnant. All the medication we are putting into our bodies is poison and that poison WILL be passed to your baby. Just look at how the medical community is always saying one medication is great, and then they pull it off of the market. Look at all the medications that were taking 30-40 years ago and now they are realizing they caused irreversible damage, (maybe even why we have Lupus ourselves?).
Plaquenil is not safe. Here are some of the side effects: Nausea, stomach cramps, loss of appetite, diarrhea, dizziness, or headache. Arm/leg/back pain, fast/irregular heartbeat, hair loss/color change, mental/mood changes (e.g., anxiety, depression, hallucinations), ringing in the ears/hearing loss, worsening of skin conditions (e.g., psoriasis). Symptoms of a serious allergic reaction may include: rash, itching/swelling (especially of the face/tongue/throat), dizziness, trouble breathing.
Regarding taking Plaquenil while pregnant, the website states: "Caution is advised when using this drug in children because they may be more sensitive to the side effects of the drug. This medication is not recommended for long-term use in children. If a child accidentally takes this medication, even a small amount can be very harmful (possibly fatal). Be sure to keep this drug out of the reach of children.
This medication should be used only when clearly needed during pregnancy. This medication is not recommended for use in treating rheumatoid arthritis during pregnancy. Discuss the risks and benefits with your doctor.
This medication passes into breast milk. Consult your doctor before breast-feeding."
Steroids are absolutely HORRIBLE and you should definitely NEVER take those while pregnant or breast feeding.
Plaquenil is safe. I was told it was more risky to be off the plaquenil than on it. Steroids are OK too. I dontnthink you can take Imuran though. Definitely work closely with your doctors. Pregnant with Lupus is considered high risk and there are more appointments and a ton of ultrasounds. If the Lupus is under control though before you get pregnant then most times there are no problems. I have four kids and all are healthy :) The pregnancy can be painful, especially the joints at the end. But I made it through! Its common to flare after delivery and I did flare immediately after birth, but we were ready for it. Good luck!!! :))