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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question 💭
Glasgow, UK

How do I know when they happen? How do I recognise them?

February 7, 2015
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A MyLupusTeam Member

I get really tired. My joints ache. When I say joints I mean every spot where there is a joint, the ankles, the fingers, the clavicle and sternum fused joint, all hurt. My hands and feet swell. I get the chills. I can't get warm. My skin gets so sensitive that my clothes hurt. I get short of breath, extremely weak and tired. Sometimes I'm in bed for 3 days sleeping on and off and still exhausted.
It helps to write down your symptoms, that way you can anticipate a flare and take steroids or anti inflammatory medicines early.

February 8, 2015
A MyLupusTeam Member

You get sick and completely lethargic along with a fever, usually rashes headaches or nauseated and will become bed ridden from anywhere from a week, to a month, to a few months.You will know....

February 8, 2015
A MyLupusTeam Member

I'm in the same boat....I have no idea what to look for. All I know is that it's completely different for every single person

February 7, 2015
A MyLupusTeam Member

My face feels tingly, I feel achey all over and I am very tired.

February 7, 2015
A MyLupusTeam Member

Sometimes it feels like you have a case of really bad flu like symptoms. Muscles ache, headache pain in joints if you have that. You are really tired and want to sleep a lot.

February 7, 2015

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