Connect with others who understand.

sign up log in
About MyLupusTeam
Powered By
Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
Has Anyone Ever Been Dx With Lupus But The Doctors Can't Tell You Which Kind Because All The Test Comes Back Uncluesive
A MyLupusTeam Member asked a question 💭
posted April 8, 2015
View reactions
A MyLupusTeam Member

I've heard of this happening because it can be hard to diagnose. Lupus is elusive and often called "The Great Masquerador " because it can mimic so many other illnesses. The test isn't the only indicator, your specific symptoms tell a story too. Maybe you should seek a second opinion. There are some with lupus that don't test positive, but do have it. Also, someone testing positive may not test positive at a later date. Read about the different ones on-line and see what your symptoms most closely resemble. Good luck.

posted June 30, 2017
A MyLupusTeam Member

Is I started on the methotrexate and steriods. Methotrexate didn't work and steriods put fluid on me

posted April 8, 2015 (edited)
A MyLupusTeam Member

They say Seronegative (ANA negative) Lupus makes up 3% of Lupus patients. I truly believe that is ONLY because doctors call it something else if they don’t have a positive ANA! I wish there was a group of Seronegative Lupus patients that could be studied to PROVE that it is much more common than presumed. It makes it near impossible for us to qualify for LTD, SSD, etc. It’s a continuous battle with insurance companies. It’s easier to accept the misdiagnosis to keep a “qualifying” status, but it is not right. And it makes it that much harder for others in our position.

posted August 26, 2021
A MyLupusTeam Member

Yes. My diagnosis’s bounce all over the place. The important part is the medicines. If you’re still getting it RXed, just go with it. That’s how my dr. explained it.

posted April 6, 2021
A MyLupusTeam Member

They say I have cutaneous and discoid, positive biopsy test ten years after first inconclusive biopsy. I have many health issues that are associated with SLE but no positive tests to prove SLE.

posted January 6, 2020

Related content

View all
Is There Anyone Currently On A Drug Trial?
A MyLupusTeam Member asked a question 💭
What Is Lupus?
A MyLupusTeam Member asked a question 💭
Apprehensive About Becoming Pregnant...
A MyLupusTeam Member asked a question 💭
Continue with Facebook
Continue with Google
Your privacy is our priority. By continuing, you accept our Terms of Use and Privacy Policy.
Already a Member? Log in