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Has Anyone Ever Been Dx With Lupus But The Doctors Can't Tell You Which Kind Because All The Test Comes Back Uncluesive

Has Anyone Ever Been Dx With Lupus But The Doctors Can't Tell You Which Kind Because All The Test Comes Back Uncluesive

A MyLupusTeam Member said:

I've heard of this happening because it can be hard to diagnose. Lupus is elusive and often called "The Great Masquerador " because it can mimic so many other illnesses. The test isn't the only indicator, your specific symptoms tell a story too. Maybe you should seek a second opinion. There are some with lupus that don't test positive, but do have it. Also, someone testing positive may not test positive at a later date. Read about the different ones on-line and see what your symptoms most closely resemble. Good luck.

posted over 4 years ago
A MyLupusTeam Member said:

They say I have cutaneous and discoid, positive biopsy test ten years after first inconclusive biopsy. I have many health issues that are associated with SLE but no positive tests to prove SLE.

posted almost 2 years ago
A MyLupusTeam Member said:

I am on plaquenil once a day .

edited, originally posted over 6 years ago
A MyLupusTeam Member said:

Is I started on the methotrexate and steriods. Methotrexate didn't work and steriods put fluid on me

edited, originally posted over 6 years ago
A MyLupusTeam Member said:

What meds are you currently on? Im on a low dose plaquenil and its not helping

edited, originally posted over 6 years ago
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