I've heard of this happening because it can be hard to diagnose. Lupus is elusive and often called "The Great Masquerador " because it can mimic so many other illnesses. The test isn't the only indicator, your specific symptoms tell a story too. Maybe you should seek a second opinion. There are some with lupus that don't test positive, but do have it. Also, someone testing positive may not test positive at a later date. Read about the different ones on-line and see what your symptoms most closely resemble. Good luck.
They say I have cutaneous and discoid, positive biopsy test ten years after first inconclusive biopsy. I have many health issues that are associated with SLE but no positive tests to prove SLE.
I am on plaquenil once a day .
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