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I've heard of this happening because it can be hard to diagnose. Lupus is elusive and often called "The Great Masquerador " because it can mimic so many other illnesses. The test isn't the only indicator, your specific symptoms tell a story too. Maybe you should seek a second opinion. There are some with lupus that don't test positive, but do have it. Also, someone testing positive may not test positive at a later date. Read about the different ones on-line and see what your symptoms most closely resemble. Good luck.
Is I started on the methotrexate and steriods. Methotrexate didn't work and steriods put fluid on me
They say Seronegative (ANA negative) Lupus makes up 3% of Lupus patients. I truly believe that is ONLY because doctors call it something else if they don’t have a positive ANA! I wish there was a group of Seronegative Lupus patients that could be studied to PROVE that it is much more common than presumed. It makes it near impossible for us to qualify for LTD, SSD, etc. It’s a continuous battle with insurance companies. It’s easier to accept the misdiagnosis to keep a “qualifying” status, but it is not right. And it makes it that much harder for others in our position.
Yes. My diagnosis’s bounce all over the place. The important part is the medicines. If you’re still getting it RXed, just go with it. That’s how my dr. explained it.
They say I have cutaneous and discoid, positive biopsy test ten years after first inconclusive biopsy. I have many health issues that are associated with SLE but no positive tests to prove SLE.
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