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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question 💭
Red Deer, AB

Hi :)
I am told that the Lupus is only in my skin at this point but I continue to have internal symptoms such as fatigue, aching joints, dizziness and tingling in my limbs.

Does anyone else experience these internal symptoms with cutaneuos lupus?

Thanx!

August 11, 2015
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Reactions
A MyLupusTeam Member

I too have the skin kind and RA but experience extreme fatigue, among other symptoms of SLE which runs in my family but it seems doctors are hesitant to say yes or no. It's rather confusing but very life affecting.

August 12, 2015
A MyLupusTeam Member

Try this sunblock vanicream broad spectrum spf 35 walgreens or cvs or try cotz face same place. They help me and at least a three inch rim hat long sleeves sun glasses. I was told to wear all of this just to go to mailbox even in the car.

August 14, 2015
A MyLupusTeam Member

I have the skin only during the summers when I go outside even if I have long sleeves or sunblock on and I have joint pain with muscle aches along with fatique. My Lupus flares are dormant now, but my labs still show Lupus.

August 13, 2015
A MyLupusTeam Member

I also was diagnosed with cutaneous,sle in my kidneys and in my and my circulation and of course my body doesn't absorb calcium she's only making my disease my bones deteriorate quicker

July 14, 2018
A MyLupusTeam Member

Get these too- usually on legs and head. A dermatologist told me they are sub cutaneous and deep scarring.

July 11, 2018

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