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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question 💭
Plymouth Meeting, PA

I'm really confused. My rheumatologist told me almost a year ago that I have Sjoghrens and Lupus. My PCP just told me that if the Anti-SS-B is negative, I don't have Lupus. Both A and B must be positive. I'm both confused and hopeful that my rheumatologist was wrong. Any thoughts or information?

July 21, 2016
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A MyLupusTeam Member

In the SLICK criteria you need to have 4 things that applybto you... Even when your blood seems oke, or you have only positive ANA, it does not matter... You still can have Lupus

July 21, 2016
A MyLupusTeam Member

Negative here for the last 24 yrs. Still have Lupus!! I don't and my rheumatologist doesn't pay much attention to the anti-DNA ...etc bloodwork. He thinks that how I feel (long-term) and a CBC-complete blood count & kidney function tests are much more important and show how the lupus is affecting my body & organs. I really think those tests (anti-DNA, anti-RO, anti-SSB...etc are for the scientists, not for us!

July 21, 2016
A MyLupusTeam Member

I have Lupus and Sjogrens. I have above average titers in the ANA blood test and my numbers are very high in the SSA and SSB Antibodies bloodwork.
The SSA and SSB do NOT have to be present to my knowledge for a Lupus diagnosis. The information you were given I believe is incorrect with all due respect to your doctor.

July 21, 2016
A MyLupusTeam Member

Both conditions are auto-immune related and in the same family of symptoms.
Remember, Dr's aren't immune from making a wrong diagnosis. They're as fallible as anyone else. Just not supposed to be because of their "extensive education". Their OPINION is just that, their opinion.
If what they tell you doesn't sound "right", that's your intuition and experience with "lupus" telling you to get a SECOND OPINION.
Intuition is what I call "an Angel tapping on your shoulder telling you to pay attention"

July 26, 2016
A MyLupusTeam Member

Check out hopkinslupus.org the answers you seek and much more will be here. Hopefully this will help you out a little.

July 22, 2016

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