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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question 💭
Ringgold, GA

Any have days where their muscles feel shakey or really weak? Mine are already weaker, but I mean like more than usual. Thanks

April 7, 2017
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A MyLupusTeam Member

My muscles especially legs..feel shaky when I begin to dehydrate..which happens often with this illness....my calcium..magnesium and zinc tablets help with plenty of water...flares will also affect muscle strenght......meds drain our system and reAK havoc with our systems...sugar levels may drop and make you feel shaky and weak...a glass of orange juice...can help stabilize levels....hope this helps

April 7, 2017
A MyLupusTeam Member

I was just going to put the same post on that you have.It's horrible it's in my arms that I am feeling I'm having to slide the milk along the work top.I am also having a stagger in my legs I feel I'm going to the right of me.Just told hubby last night about it I am struggling to do my ironing if I get the boys school uniform's done then I have no energy to do the rest of it so fed up with it all.And it doesn't help with the not sleeping

April 7, 2017
A MyLupusTeam Member

Yes I've also had periods where my legs go extremely weak. But also very tense and rigid. I end up sliding my legs to walk as they feel to heavy to lift. They did all the neural tests and nerve tests which all came back fine. But it kept getting worse until I was bed ridden

The only thing that helps is a shot of intra muscular cortisone. And then I'm walking almost completely normally within two days. It starts to wear off at about 6 weeks and I go for another shot.

Anyone who has experienced this have any problems with their colon? Slow colonic transit?

April 9, 2017
A MyLupusTeam Member

Yes. 8 months ago I did spinning 4 days a week and lifted weights. Now carrying my grocery bags is a challenge. Sometimes I can't even open the vitamins bottle.

April 8, 2017
A MyLupusTeam Member

Yes, I've been feeling like this for the past few days. It's hard to hold things for very long or even walk very far. I feel terrible. I just made a post myself about it wondering if this was something others experience and what I could do.

April 8, 2017

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