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I am newly diagnosed and your small flare ups is how I feel every day so I am concerned about these major flare ups you talk about. What do you feel like?
From what you shared in one of your earlier post, You asked what we would call a major flare, it sounds like you had a major flare when you stayed in bed for three days and the difficulty of getting a bath. Most of us discuss the fatigue and pain. But there are times flares can cause many symptoms. Hope this helps.
Sad part is after awhile. You get used to the signals. Of it coming on . and get kinda used to it and learn to ride it out over time. Good luck .im rooting for ya
I will suffer from costochondritis, fatigue that makes my bones hurt all over, my hair falls out, too exhausted to chew food, the feeling that I can’t take one more step-literally collapsing and just wanting to sleep all day and night.
Lupus flares can vary in severity. Major flare symptoms often include:
- Increased pain: Both in the joints and muscles
- Rashes: Including the lupus rash, a butterfly-shaped mark on the face.
- Headaches.
- Stomachaches.
- Fevers.
- Fatigue.
- Dizziness.
- Swollen legs.
- Sores (ulcers): In the nose and mouth.
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That scares me. I'm sorry you have such severe symptoms
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