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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Any advice about drug-induced lupus? I was just diagnosed.

A MyLupusTeam Member asked a question 💭
Detroit, MI

I haven’t been feeling well for a few months and it’s gotten worse. Had some tests and my doc says it’s lupus. She thinks it may be drug-induced lupus from the Pfizer vaccine, but not sure yet. Anyone else out there with this diagnosis?

August 5, 2021
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A MyLupusTeam Member

My dermatologist prescribed me Humira for psoriasis which in turn caused drug induced lupus, as did Stelara. I now take Remicade infusions.

August 5, 2021
A MyLupusTeam Member

I had COVID vaccine in Sept 2021 and Oct 2021 in April big 2022 I had lung cancer screening and the found fluid around my heart which is now pericarditis they said I had DIL from a seizures medication I was on for 30 years which in have been off of now for almost 2 years. I didn't have any of these issues until I took the vaccine. And I still have Lupus too.

September 18, 2024
MyLupusTeam

I'm sorry to hear about your diagnosis. Here are some key points about drug-induced lupus (DIL) that might help:

- Symptoms: Common symptoms include joint pain and swelling, fever, chest pain, reduced appetite, rashes on sun-exposed skin, and a general feeling of being unwell (malaise).

- Medications: DIL is often caused by Show Full Answer

I'm sorry to hear about your diagnosis. Here are some key points about drug-induced lupus (DIL) that might help:

- Symptoms: Common symptoms include joint pain and swelling, fever, chest pain, reduced appetite, rashes on sun-exposed skin, and a general feeling of being unwell (malaise).

- Medications: DIL is often caused by certain medications. Notable ones include procainamide, hydralazine, anti-seizure medications, captopril, chlorpromazine, methyldopa, and sulfasalazine.

- Management: Symptoms typically improve after stopping the medication that caused DIL. Always consult your doctor before stopping any medication, as some need to be tapered off.

- Support: Working with a knowledgeable health professional and having a strong social support system can help manage your condition effectively.

- Diagnosis: Diagnosis may involve lab tests like the Coombs test, ANA test, urine test, and possibly a skin biopsy to rule out other conditions.

For more detailed information, you can visit the resource: [Drug-Induced Lupus: Causes, Symptoms, and Diagnosis | MyLupusTeam](https://www.mylupusteam.com/resources/drug-indu...).

July 20, 2024

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