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A MyLupusTeam Member asked a question 💭

Does anyone find themselves feeling fearful when going out to public places? I constantly feel like I’m going to get Covid or seriously ill I don’t know if that feeling is normal in the beginning of your diagnosis or because my mother passed with Covid.

February 2, 2023
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A MyLupusTeam Member

I myself know the risk is there but I don't really spend any time thinking about it. I continue to live my life as normal. There's always going to be something out in the world but it will take away from my life today if I spend time worrying about it. It may happen, it may not. Take a few precautions if necessary and live life.
I can understand if someone close to you passed from Covid. The last couple years have been traumatic for most people.
I just believe , for me, to take precautions, if necessary, and just live life. What's going to happen is going to happen.
God has a plan for our life. We each have a journey and a destiny. We also have our own date with death. Nothing will change that..just a question if when..but God knows and I do what I can and leave the rest in God's hands.
💛🤗🙏

February 2, 2023
A MyLupusTeam Member

I know people who are cautious...and people who are not. Some people seem to be "magnets" for Covid. Some friends of mine get Covid every time they turn around, have had Covid several times ! I've been around them alot and am at high risk but I've never got Covid...thank God. I don't understand why Covid "targets" some people and not others. I'm just grateful I haven't gotten sick with it bc I have enough to deal with. I'm sorry others have had to deal with it and sorry for the loss they've experienced.
At this point perhaps everyone should make the choice they are comfortable with.
Stay well and blessed.
💛🤗🙏

February 4, 2023
A MyLupusTeam Member

So sorry to hear you lost your mom, and more than 1 million in our country have died of COVID. It makes sense for all of us to be as cautious as possible by getting vaccinated and masking indoors in crowds or if you can't distance, especially if the transmission rates are high in your community. It's suspected that those of us with autoimmune disease are more prone to organ injury and long COVID, as autoimmunity appears to be one of the triggers for more severe disease and long-term complications. I know a woman who has mild lupus who is now requiring oxygen all the time after developing COVID, for example.

Checking out the CDC website for risk factors for severe COVID is helpful, too, so you can gauge your level of risk. Those of us on immunosuppressant medicine (basically any lupus meds other than plaquenil and very low-dose prednisone) are also more prone to severe infection and hospitalization.

We should still live our lives as best we can, but it's helpful to be informed and take proper precautions!
Take care.

February 3, 2023
MyLupusTeam

Living with lupus can indeed bring about a lot of fear and anxiety. Here are some insights from others who have experienced similar feelings:

- Managing Fear: "Panic is our great enemy. Say to yourself today, I will relax, breathe and go with the flow. Many of us have been afraid for so long that we don’t label our feelings Show Full Answer

Living with lupus can indeed bring about a lot of fear and anxiety. Here are some insights from others who have experienced similar feelings:

- Managing Fear: "Panic is our great enemy. Say to yourself today, I will relax, breathe and go with the flow. Many of us have been afraid for so long that we don’t label our feelings here. We are used to feeling upset and anxious. It’s time to thank our old fears for helping us survive then wave goodbye to them. We don’t need that much fear anymore. Listen to our healthy fear and let go of the rest."

- Positive Experiences: "It was a wonderful evening full of fun, love, and happiness. Who could ask for anything more? I am truly blessed and it made me not think about the symptoms that I cannot do anything about."

- Mental Health: "I have struggled with depression and anxiety off and on and I have learned that getting help with those is of key importance to helping with my pain and overall health."

- Replacing Fear with Love: "Replace fear-based thinking with love-based thinking. Every time you're making a choice, ask yourself if it's going to cultivate the experience of unity and love or the experience of separation and stress."

- Personal Realizations: "I finally came to realize that my fears about having lupus and what that could potentially mean were ADDING to my pain. Once I consciously decided to relieve myself of that burden, I could better focus on managing my condition."

Remember, it's important to address these fears and seek support when needed. You're not alone in this journey.

July 26, 2024
A MyLupusTeam Member

I agree

February 4, 2023

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