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A MyLupusTeam Member asked a question 💭
Hutchinson, KS

It’s an anti thinning shampoo. My scalp has been so red and burns from shampooing and I continue to lose hair. I need to find something. Right now I’m using baby shampoo. I need help.

November 29, 2023
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A MyLupusTeam Member

Everyone I know, including me, only washes their hair every 4-5 day and uses noting on it afterwards. I use Panteen for dry hair. I lost mine yrs ago after imuran. Plus, they all take the nail and hair gummies. I should add that I don't wear makeup or use any soap on my face. Only water and washcloth to remove dead shin cells.

November 30, 2023 (edited)
A MyLupusTeam Member

Aloe Vera, Aloe Vera, Aloe Vera, it’s a juice in the medicine aisle (I get mine from Walmart). And the plant (I get that from my grandma)

April 16, 2024
A MyLupusTeam Member

Hi Tina, on Amazon they have a hair product called VENANOCI organic BLACK RICE WATER SPRAY for hair growth. I use it to soothe my scalp, feel in bald spots, and grow my hair.

April 16, 2024
A MyLupusTeam Member

Tina, I used Purador for about a year. It made my hair feel really nice. It didn't help with my hair growth though. I wanted my hair to get thicker. And then I could not find it anywhere. Never thought about Amazon.

January 8, 2024
A MyLupusTeam Member

The singular plus the H1 &H2 blockers keep my mast cells from going nuts. I seldom get rashes unless I'm working in the garden without sunscreen on. Loratadine/Claritin 10 to 40mgs a day is over the counter. The Fomotidine is 40mgs 3 times a day. That controls the mast cell proliferation in my gut and bone marrow and allows me have low stable BP when I get triggered, rather than go into shock. None of this controls pain or fatigue. However, with a constant ANA of 1280 now, I can function with care. I have tested positive for both Sjogrens A & B at the Mayo ans SLE. I have a long list of other positive dxs. I first crashed when I was 8 and little to nothing was know. I'm 75 now. I have a huge liver and spleen and lots of lung, gut & kidney issues. But, inspite of almost dying 3 times, I'm here. Today, they know so much more about autoimmune diseases. From the 1960s until 2000, I belonged to the disease of the week club. I hope this info helps you. Really learn your triggers and don't worry about how other's, including doctors & family, think of you. Your not sick by choice. The fatigue is real. Blessings ❤️

December 3, 2023

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A MyLupusTeam Member asked a question 💭
Raleigh, NC