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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question ๐Ÿ’ญ
Lowell, MI
March 26, 2024
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A MyLupusTeam Member

Wendy, do not panic, as the interstitial lung disease from lupus (if that's what you have) usually tends to be very mild and does not progress. Mine has been stable for nearly 40 years now.

March 29, 2024
A MyLupusTeam Member

They are rescanning me in 3 months

March 27, 2024
A MyLupusTeam Member

Hi.. Sending prayers ๐Ÿ’œ

March 26, 2024
A MyLupusTeam Member

I also had some very mild interstitial changes in my own lung CT a couple of years ago. During my years working as an ICU nurse, I saw it in patients with Acute Respiratory Distress Syndrome, an acute illness that often required ventilatory support during treatment. The type seen with SLE is usually less virulent-not as extensively involved, and can be managed. Glad you're seeing your Provider for follow up. I think that will determine a course of therapy for you. I'm doing well and am active with little or no symptoms. I take no medication for it except for a couple of puffs of inhaled Albuterol before exercise-if I remember!

April 20, 2024
A MyLupusTeam Member

Thanks for sharing

March 29, 2024

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