The reason that the neurologist and the rheumatologist are not on the same page I because they are two different specialists. You would ask the ophthalmologist about what the gyn said. It's not their area. The neurologist only studies things that deal with the central nervous system. The rheumatologist deals with the immune system. There are issues that can go away when dealing with neurology but lupus is forever. The neurologist does not order a full work up on your body. The full work includes your WBC, the level of ADA number which tells you what stage you're in, the higher the number the more the flares, you need your complements, you calcium levels, you RBC numbers, and other things. The neurologist only sends blood for your cholesterol but cholesterol can block arteries especially the artery in your neck which can cause strokes. I wod never allow my neurologist prescribe blood work for areas that they didn't study. Listen, I'm 31 years in because I have learned from experience. I have severe lupus not mid. I've had 10 strokes. You have to start researching for yourself because you'll become a experiment unknowingly. I've studied doctors before I first saw them. I know where they are from, what college, what they studied as undergrad and grad, what research projects they have done and how long they have been in that field. I dint have no time to play with nobody. I also say HELL NO. My doctors call me "trouble" because I bring it without remorse. This is your body, this is your life not the rheumatologist or neurologist. Research your symptoms and match them up with your daily routine. Didn't mean to be so long but I need yall to understand what positions that you're in. One slip up and you could die...

I hate when they do that they are never on the same page 😒😒😒

Yes, they can tell the difference. My lupus did not cause the neuropathy. Neuropathy is not just a complication of having lupus. Actually, having a chronic illness isn't one of the main reasons for neuropathy. Your rheumatologist knew that from blood work. If you have an infection, high sugar levels, certain medications, pressed nerves, injuries are the main causes then other issues which is a small percentage is like 5%- 10%. A neurologist doesn't know because he hears the symptoms when the rheumatologist has blood work. Sometimes Neuropathy comes from medication. Neuropathy left me when prednisone left. Ask your Primary if they can do a full blood panel and compare the rheumatologist and show the neurologist your result, then you will know but all of your medical issues aren't lupus related because you have lupus.

Yes, lupus can cause neuropathy, but it's important to check labs, including glucose/Hba1c, thyroid function, vitamin B12 level, etc. to ensure there's no other cause.

Lupus can damage nerves in the body by causing inflammation of the nerves or the tissue around the nerves. This nerve damage is sometimes called peripheral neuropathy. The main symptoms are numbness, tingling, and being unable to move a part of your body.

Other symptoms include:

Loss of vision
Face pain
Ringing in the ears or change in hearing
Dizziness
Drooping face and eyelids
Carpal tunnel syndrome, which causes pain, tingling, and numbness in the hand