Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question 💭
Oxford, MS

On the left side my leg and my arm also reflex by themselves it has been doing these at various times for about 9 months. I have mentioned it 2 my primary but not Rheumatologist. He doesn't seem to concerned about nothing anyway. I have an appointment with a Neurologidt in April.

March 2, 2025
 · 
Reactions
A MyLupusTeam Member

Check for small fiber neuropathy it’s a biopsy of small fiber nerves I have the same issue and for years it was like I made it up in my head because the emg needle torture test was always negative until I got a neurologist who said let me check for autoimmune neuropathy aka sfn since you have multiple autoimmune disease and she was right thank goodness because after 17 years of doctors you start to feel like it’s in your head! Good luck hopefully you get some relief and answers soon

March 2, 2025
MyLupusTeam

The sensations you're describing could be related to peripheral neuropathy, which can occur with lupus. This happens when lupus affects the nerves outside your brain and spinal cord. These nerves control sensations like touch and temperature, and when damaged, can cause unusual feelings like water running down your skin or Show Full Answer

The sensations you're describing could be related to peripheral neuropathy, which can occur with lupus. This happens when lupus affects the nerves outside your brain and spinal cord. These nerves control sensations like touch and temperature, and when damaged, can cause unusual feelings like water running down your skin or involuntary movements.

It's good that you have a neurology appointment scheduled. The neurologist may recommend tests like nerve conduction velocity (NCV) or electromyography (EMG) to evaluate your nerve function and determine the best treatment approach. While waiting for your neurology appointment, it's important to mention these symptoms to your rheumatologist as well. Even if your primary care doctor seems unconcerned, these symptoms deserve attention as they could be related to your lupus. Keep a log of when these sensations occur and what you're doing when they happen - this information will be valuable for your doctors to better understand your symptoms.

March 2, 2025
A MyLupusTeam Member

When I am in repetitive flares I have gotten those sensations. I lean heavily on Ginger and tumeric and avoid the foods/sun/cold weather/stress that's causing me to flare and get plenty of rest. Now that I am in remission I haven't had those sensations in a while. God bless

March 2, 2025
A MyLupusTeam Member

I’ve actually been experiencing the same thing over the last couple months and I thought at first it was just in my head. I’m definitely gonna have to mention it to my rheumatologist and my primary care when I see them soon. Thank you for asking that question Because I’d like to find out from others as well. Sending you Hugs and prayers❤️🙏

March 2, 2025
A MyLupusTeam Member

I get a feeling of warm fluid in my Rt lower and quadrant. Not painful but definitely weird,

March 2, 2025

Related Questions

View All
A MyLupusTeam Member asked a question 💭
Fontana, CA

A MyLupusTeam Member asked a question 💭
St Charles, MO

A MyLupusTeam Member asked a question 💭
Decatur, GA