As frustrating as it may be, get a second opinion. I suggest you read the next rheumatologist's bio. You want to be sure that their special interest is lupus.
July 14, 2025
Go to another Dr or ask about what other diseases have same symptoms
July 14, 2025
It took awhile to diagnosed me because all my symptoms were very mild and could be other diseases until one major symptom appears the rash was blow out on my face so if you have lupus or relative of,lupus
July 14, 2025
Getting different opinions from doctors can be incredibly frustrating and confusing. It's important to understand that diagnosing lupus can be complex since no single test can confirm it definitively. A diagnosis typically requires a combination of symptoms, physical examination findings, and laboratory test results.
Common Show Full Answer
Getting different opinions from doctors can be incredibly frustrating and confusing. It's important to understand that diagnosing lupus can be complex since no single test can confirm it definitively. A diagnosis typically requires a combination of symptoms, physical examination findings, and laboratory test results.
Common symptoms that doctors look for include:
- Skin rashes (especially butterfly rash)
- Joint pain/swelling
- Mouth or nose sores
- Unusual bruising or bleeding
- Hair loss
- Raynaud's phenomenon
- Kidney issues
- Heart or lung inflammation
- Neurological problems
- Persistent fatigue If you're concerned about conflicting opinions, consider these steps:
1. Request copies of all your lab work and test results
2. Ask for a detailed explanation from both doctors about their reasoning
3. Seek a third opinion from another rheumatologist
4. Keep a detailed symptom diary to share with your healthcare providers
5. Remember that some people may initially have incomplete or borderline lupus that becomes clearer over time
As one MyLupusTeam member shared, they weren't diagnosed until age 63 despite having symptoms for many years. Getting the right diagnosis can take time, but it's important to stay persistent in advocating for your health.
July 14, 2025