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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question 💭
crzyredhead53@gmail.com

I see rainbow-like colors on the outside of my vision. They come and go, and don't have any effect on my regular vision. It affects my peripheral vision. My opthalmologist said it wasn't lupus related, but I googled it out of curiosity, and it mentioned lupus being one of the causes of this rare phenomenon.

September 15, 2025
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A MyLupusTeam Member

I sure was. I find that people who have lupus have many oddball things happen with them.

September 16, 2025
A MyLupusTeam Member

I had an optical migraine a number of years ago. I was still working at the time and all of a sudden I was blind. A co-worker took me to the eye doctor and he said it would pass. My eyesight returned in a matter of hours. Never happened again.

September 15, 2025
A MyLupusTeam Member

Hi there. I have migraines and the experience you are speaking to is called seeing an “aura.” They usually come on right before the migraines start and can continue to be present for the length of the migraine. My neurologist said it’s common to have them. I used to get migraines more frequently when I was young and treated them with Imitrex. Since I’ve gotten older, they don’t happen as frequently. (Thank goodness!!). I’m sorry you are experiencing them as well. Do you take anything for them?

September 26, 2025
A MyLupusTeam Member

Wow! I bet you were scared! Huggs

September 15, 2025
MyLupusTeam

Vision changes can be a concerning symptom for people with lupus. While your ophthalmologist has indicated this isn't lupus-related, it's important to monitor any changes in vision carefully. Lupus can affect various parts of the eye including the retina, and symptoms can range from mild to severe.

Common lupus-related Show Full Answer

Vision changes can be a concerning symptom for people with lupus. While your ophthalmologist has indicated this isn't lupus-related, it's important to monitor any changes in vision carefully. Lupus can affect various parts of the eye including the retina, and symptoms can range from mild to severe.

Common lupus-related vision symptoms include:
• Blurred vision
• Watery eyes
• Partial vision loss
• Changes in peripheral vision
• Damage to nerves controlling eye movement If you experience any changes in vision, even if they seem minor, it's important to maintain regular check-ups with your eye doctor. Make sure to keep your rheumatologist informed about these symptoms as well, as they may want to adjust your treatment plan or monitor your condition more closely. Vision symptoms can sometimes be related to overall lupus disease activity.

Remember that retinal problems are less likely to occur when lupus is well-controlled, so staying consistent with your prescribed treatment plan is essential.

September 15, 2025

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