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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
October 14, 2025
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A MyLupusTeam Member

saphnelo oops

October 15, 2025
A MyLupusTeam Member

Della, are you sure the infusion is into the saphenous vein, which is in the leg?

October 15, 2025
A MyLupusTeam Member

I haven't taken it, Della, but some on MLT have said it has helped them.

October 17, 2025
A MyLupusTeam Member

No , but consult your doctor and actually trust your gut instinct because . lupus is so tricky and it doesn't go away , , ,so make sure that if you tried this before & you had a hard time with it , you know to use your gut instinct. because we're just going to have to deal with this lupus thing for pretty much the rest of our lives until they do find a cure for it you just have to really trust your body & stay hydrated I don't know if you have other underlying health problems .The lupus itself causes a new thing every year for me some new symptom all the time , soI just take your regular medication & rest pray stay hydrated stay ou the sun and just stay prayed , up okay my friend. hope you feel better so sorry for wrong spelling 😅 I am have a flare up Wright now and it's so hard to concentrate ty for sharing and the people on this team are Awesome 👌

October 15, 2025 (edited)
A MyLupusTeam Member

No worries. Thank-you. I tried some regular sailing nasel spray today. It seem to help. I have prescription ones but I thought it might help for everyday. Will see how it goes

October 15, 2025

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