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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
September 24
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Answer Summary

Members responded with care to a question about a sudden headache behind the left eye, with several noting that any sudden or severe head pain... Read more

Members responded with care to a question about a sudden headache behind the left eye, with several noting that any sudden or severe head pain deserves prompt medical attention, including an ER visit or follow-up with a rheumatologist. Possible causes mentioned included lupus, migraines, sinus pain, high blood pressure, and glaucoma, with one member sharing their own experience managing glaucoma with medicated drops and regular eye exams every six months. A recurring theme was the importance of notifying a doctor, getting symptoms documented, and leaning on community support while navigating pain.

A MyLupusTeam Member

Any sudden severe pain is a good reason for an ER visit, Tima, but I'm glad you improved with medication. There are many possible causes, including lupus, migraines, sinus pain, high BP, or eye problems such as glaucoma. Please see your doctor and keep us posted!

September 25
A MyLupusTeam Member

I get those from time to time, happy to hear you got some relief. If it is re-occuring , have your dr notified and have it documented.πŸ’œ

September 25
A MyLupusTeam Member

I get really bad migraines myself sometimes they can last for days. You're in my prayers and I hope your headaches start getting better bless you and big hugs

September 25
A MyLupusTeam Member

See your rheumatologist or internist.

September 27
MyLupusTeam

A headache behind one eye that disrupts sleep is definitely worth paying attention to, especially with lupus in the picture. It could have several possible causes connected to lupus, including:

- Occipital neuralgia – nerve-related head pain that can radiate behind the eyes
- Migraines – lupus can increase the likelihood of Show Full Answer

A headache behind one eye that disrupts sleep is definitely worth paying attention to, especially with lupus in the picture. It could have several possible causes connected to lupus, including:

- Occipital neuralgia – nerve-related head pain that can radiate behind the eyes
- Migraines – lupus can increase the likelihood of these, sometimes with symptoms like visual changes
- Idiopathic intracranial hypertension – a rare condition causing pressure buildup that often feels worse when lying down, and can cause pain behind the eyes
- High blood pressure – more common in people with lupus and can cause throbbing head pain Since the headache was sudden, one-sided, behind the eye, and severe enough to keep you awake, it's a good idea to contact your doctor soon β€” don't just wait it out.

Try to note details like:

- When it started and how long it lasted
- Whether vision changed at all
- Any other symptoms like nausea or a pulsing sound in your ears

That information will really help your doctor figure out what's going on. If the headache returns suddenly and severely, seek medical care right away.

September 24

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