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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question 💭
Oxford, MS
October 16, 2025
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A MyLupusTeam Member

In my case, I have been in remission for almost 1 year now. At the time I was not even familiar with the term "remission" My Rheumatologist told me due to my ANA markers showing Negative and a huge drop in my inflammation markers (well within range from what it was previously upon diagnosis) that I was in remission but I should still take my medication (Plaquenil) 1 tablet as a maintenance dose. I did however experience new symptoms 4 months after being in remission such as photo/UV light sensitivity and ringing in my ears which now a ENT confirms is Tinnitus. Overall I am better than I initially was upon diagnosis and 1 year after that. I focus on minimising my stress triggers and stay indoors during peak UV light hours. I also eat healthy and play Padel for fitness

October 16, 2025
MyLupusTeam

Lupus remission means a period when the disease is not active and symptoms are under control. For clinical remission, doctors look for:

• Normal kidney function (eGFR above 60)
• Little to no protein in urine
• No active lupus symptoms present
• Sustained improvement for at least one year The duration of remission can vary Show Full Answer

Lupus remission means a period when the disease is not active and symptoms are under control. For clinical remission, doctors look for:

• Normal kidney function (eGFR above 60)
• Little to no protein in urine
• No active lupus symptoms present
• Sustained improvement for at least one year The duration of remission can vary significantly between individuals. Some people with mild lupus may experience long remission periods lasting 10 years or more. However, it's important to note that lupus is unpredictable and flares can occur even when following treatment plans carefully.

Maintaining remission for at least three years is particularly important, as research shows this helps prevent long-term kidney damage and reduces overall organ damage risk.

October 16, 2025
A MyLupusTeam Member

I don’t know how people define remission. I have never been without symptoms. Just different levels and when they are light, I consider that success. Since I got on Saphnelo, this is the best it has ever been and I’m so grateful my insurance covers it. I’ve read on here how people have been in remission for 12 years or they have used diet to totally get rid of Lupus. I’ve read this but I have never actually met anyone who has experienced this. I don’t know what to think and wonder if people who state they went into complete remission actually had Lupus to begin with. I don’t know. I just know for myself, I have never returned to where I was prior to the diagnosis.

October 19, 2025
A MyLupusTeam Member
October 18, 2025

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