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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question 💭
New Orleans, LA
November 22, 2025
 · 
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A MyLupusTeam Member

Thank you I’m grateful

March 23
MyLupusTeam

What books can help you learn more about lupus?

There are several highly recommended books that can provide valuable information about living with lupus:

Practical Guides
- "Despite Lupus: How to Live Well with a Chronic Illness" by Sara Gorman offers practical advice on behavior and diet changes, along with physiological Show Full Answer

What books can help you learn more about lupus?

There are several highly recommended books that can provide valuable information about living with lupus:

Practical Guides:
- "Despite Lupus: How to Live Well with a Chronic Illness" by Sara Gorman offers practical advice on behavior and diet changes, along with physiological explanations for managing your health
- "The Lupus Encyclopedia: A Comprehensive Guide for Patients and Families" by Donald E. Thomas Jr. is a comprehensive Johns Hopkins resource with diagrams, pictures, and practical tips

Personal Stories:
- "Lupus: The Battle Within: A Woman's Most Intimate Life Story" by Valerie Horn shares 50 years of experience living with lupus
- "Unbreak My Heart: A Memoir" by Toni Braxton discusses the Grammy winner's experience managing lupus while raising a child with autism

A MyLupusTeam member shared: "I'm halfway through Sarah Gorman's book, 'Despite Lupus'. Great book. Highly recommend it to all of you."

Another member noted about The Lupus Encyclopedia: "Tons of info there. Just don't panic - you likely won't experience everything it talks about."

These books can complement what you learn from your healthcare provider and help you better understand your condition.

November 22, 2025
A MyLupusTeam Member

Ok thanks I’m in so much pain barely can think straight

March 23

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