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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I have CAD=Cold agglutinins Disease and Cryoglobulinemia alongside lupus, Sjögrens disease, Antiphospholipidsyndrome, FactorVLeidenMutation

A MyLupusTeam Member asked a question 💭
Berlin Köpenick, DE

And other diagnosis. If you know anything about CAD,Cryoglobulinemia and lupus please let me know. Thank you😃👋🏼

January 1
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A MyLupusTeam Member

Natasha, many of us have cryoglobulins related to lupus. They are antibodies that tend to clump and can cause vasculitis. For most of us lupies, they don't cause any problems, though they can rarely cause skin rashes, joint pain, neuropathy, or organ damage.

Cold agglutinins are proteins that can cause autoimmune hemolytic anemia, or destruction of red blood cells. We lupies rarely have this issue.

From my limited knowledge of these conditions, neither of these generally requires any special treatment — just treatment for our lupus. Please try not to get stressed about this issue, as that only worsens our disease, as you know. Please discuss them further with your rheumatologist, of course.😘

January 2 (edited)
MyLupusTeam

How are Cold Agglutinin Disease and Cryoglobulinemia connected to lupus symptoms and treatment?

While the search results don't specifically address Cold Agglutinin Disease or Cryoglobulinemia, they do discuss related blood complications that can occur with lupus.

Lupus commonly causes various blood-related issues that share Show Full Answer

How are Cold Agglutinin Disease and Cryoglobulinemia connected to lupus symptoms and treatment?

While the search results don't specifically address Cold Agglutinin Disease or Cryoglobulinemia, they do discuss related blood complications that can occur with lupus.

Lupus commonly causes various blood-related issues that share some similarities with these conditions:

Autoimmune Hemolytic Anemia affects about 10 percent of people with lupus. This happens when your immune system creates autoantibodies that attack your red blood cells, causing them to break apart too early.

Symptoms include:
* Fever and weakness
* Shortness of breath
* Jaundice (yellowing of skin and eyes)
* Dark urine
* Rapid heartbeat

Anemia affects up to 50 percent of people with lupus and can cause chills, fatigue, weakness, and difficulty regulating body temperature.

Treatment typically focuses on managing the underlying lupus with corticosteroids, immunosuppressants, or targeted therapies. In severe cases with very low hemoglobin, blood transfusions may be needed.

Since these blood conditions involve your immune system attacking blood cells, it's important to work with both your rheumatologist and a hematologist who can monitor your blood counts regularly and explain how lupus affects your blood cells specifically.

January 1
A MyLupusTeam Member

Thank you @A MyLupusTeam Member

January 2
A MyLupusTeam Member

True Cre8tive71 ! The doctors never had the answers for me with Lupus in my flare. Nothing stops it. I lose all fluid and bottom out (my blood pressure) but I prayed to God and he showed me how to handle it. The doctors did not show me how to manage it. Jesus did. Now my PCP helps me for crazy stuff that pops up. But with my symptoms I have to manage it day by day, minute by minute. I walk a tight rope walk and Jesus is the one holding me on the rope so I don't fall off. Praise God. You can do this Natasha. I have faith in Jesus girl and I know you do too. Just pray and I pray for you on a daily basis. Hugs

January 1
A MyLupusTeam Member

I have never heard of this before. But I do know how to pray and ask God to guide the doctors on how to help you.

January 1

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