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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
February 9
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Answer Summary

Members strongly related to the experience of intense, bone-deep itching on their arms and legs that drives them to scratch until sores form,... Read more

Members strongly related to the experience of intense, bone-deep itching on their arms and legs that drives them to scratch until sores form, with many describing the sensation as skin feeling on fire and impossible to ignore or sleep through. Several members shared that antihistamine creams provide minimal relief, and the itching can occur all over the body including the head and feet, though many expressed gratitude that their faces have been spared from rashes. A recurring theme was the frustration of others not understanding how maddening and painful this symptom can be, and the resigned acceptance that it's simply another burden of living with lupus.

A MyLupusTeam Member

I do to it so itchy mostly on my arms I never get anything on my face thank God

March 29
A MyLupusTeam Member

Welcome CyndeeMorin, Carter. Yes I do hello my name is Mary from New Jersey and I also have lupus. Nice meeting you ๐Ÿ˜Š Have a wonderful week ahead ๐Ÿ’“ Always remember that yr not alone ๐Ÿค—โค๏ธ

March 29
A MyLupusTeam Member

Yes, it is absolutely awful!

February 12
A MyLupusTeam Member

Yes, I get burning and itching skin especially on my feet. It's awful.

February 12
A MyLupusTeam Member

My whole body and head drives me nuts I thought for a while I had bugs but of course I don't I guess it's just something else we have to deal with

February 12

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