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Do I need a lawyer to fight for my interests/rights?

February 14
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MyLupusTeam

How can you prevent doctors from withholding information or denying needed medication, and do you need a lawyer?

Many MyLupusTeam members have experienced frustrating situations where doctors dismissed their concerns or insurance companies denied medications. While a lawyer isn't typically the first step, there are several Show Full Answer

How can you prevent doctors from withholding information or denying needed medication, and do you need a lawyer?

Many MyLupusTeam members have experienced frustrating situations where doctors dismissed their concerns or insurance companies denied medications. While a lawyer isn't typically the first step, there are several practical strategies to advocate for yourself effectively.

To feel more heard and empowered at appointments:

* Keep detailed records of your symptoms, when they started, and how they affect daily life
* Write down your top concerns before appointments and ask direct questions
* Bring a trusted friend or family member to help advocate and remember what was discussed
* Use your medical group's app to message your doctor - writing creates a time-stamped paper trail
* Speak up calmly if you don't feel taken seriously: "I don't feel like my symptoms are being heard"
* Ask one doctor to act as your "quarterback" to coordinate care across all providers

If medication is denied by insurance:

* Call your insurance company directly to explain why the treatment is critical
* Ask your doctor if there's a comparable drug on your plan's preferred list
* Have your doctor submit additional documentation explaining medical necessity
* If denied, call back and speak with someone else - persistence can help

When to consider other options:

If you continue feeling dismissed after trying these approaches, seeking a second opinion or switching providers may be necessary. You deserve a care team that takes you seriously.

February 14
A MyLupusTeam Member

Yours too!

February 15
A MyLupusTeam Member

@A MyLupusTeam Member I'm so happy you found a competent Rheumatologist you can trust and a husband you love my dear friend, you are right, both are rare gems. I'm still looking for a competent Rheumatologist, who is willing to take on this complex challenge aka as my health, but in due time I too will have a Rheumatologist I can trust and who will prevent ER visits and hospital stays for years to come. I'm so fed up of ERs........

February 14
A MyLupusTeam Member

I found a better doctor. I found a PCP that if he made a mistake we talked about it and that is hard to find. And moving forward he never discounts my complaints or symptoms. Hes a lot like me. We are human and make mistakes when we get too busy but then go back and reflect and acknowledge it. And move forward. It took many many years to find this PCP and he and I are keeping me alive and out of the hospital. My PCP controls my Rheumatologist and my lung doctor. He puts the pressure on them if I am not feeling well and he is mighty. I love it that he and I like keeping me out of the hospital. I just manage my rest. diet, exercise and herbs. He tells me what meds are good and puts pressure on my specailty doctors. We had a diffence about Rheumatologist and he let me chose and now my Rheumatologist prescribed the best medications for me. He listened and did not discount my complaints or symptoms. I know it was like finding a needle in a haystack. Like my hubby.

February 14
A MyLupusTeam Member
February 15

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