Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
March 15
 · 
Reactions
A MyLupusTeam Member

Yes, dealing with that issue for the last 2 weeks 9 hrs of sleep, and still so tired when I wake up.

March 21
A MyLupusTeam Member

Yep. I was having it also I increased my prednisone. Than got hell from my drs. Can’t win

March 16
A MyLupusTeam Member

I saw my Rheumatologist march 2 . My blood work was okay. I did mention about sleeping so much . He just tells me its lupus fatigue.

March 16
A MyLupusTeam Member

Kaitlynn, have you seen your rheumatologist? Please do, as it sounds like you may be in a flare. Most of us have fatigue and may need ten hours of sleep at night and an afternoon nap, but 13 hours sounds concerning.

If you are not flaring per your rheumatologist, I suggest starting gently with daily exercise, such as walking. Exercise is proven to help with lupus fatigue.

March 16 (edited)
MyLupusTeam

Are you sleeping 13 hours a day but still waking up exhausted?

Yes, many people with lupus experience this frustrating issue. Fatigue is one of the most common symptoms reported by those living with lupus, and it can persist even after getting plenty of sleep.

Several factors might be contributing to your ongoing tiredness:

* Show Full Answer

Are you sleeping 13 hours a day but still waking up exhausted?

Yes, many people with lupus experience this frustrating issue. Fatigue is one of the most common symptoms reported by those living with lupus, and it can persist even after getting plenty of sleep.

Several factors might be contributing to your ongoing tiredness:

* Lupus itself causes fatigue that doesn't always improve with rest
* Poor sleep quality, even if you're sleeping many hours
* Medications you're taking (some can cause drowsiness or disrupt sleep patterns)
* Fibromyalgia, which commonly occurs alongside lupus and causes widespread pain and fatigue
* Brain fog, another common lupus symptom

A MyLupusTeam member shared: "I've been on it for years, and I think it helps me. I was tired before it, and I'm tired now. So I never thought it was the Cymbalta, just lupus!"

It's important to talk with your healthcare provider about this persistent fatigue. They can help determine what's causing it and adjust your treatment plan if needed. Sometimes a sleep study or other tests can provide more insight into sleep quality issues.

In the meantime, maintaining a consistent sleep schedule, staying gently active when possible, and managing stress may help improve your energy levels over time.

March 15

Related Questions

View All
A MyLupusTeam Member asked a question 💭
Niagara Falls, ON

A MyLupusTeam Member asked a question 💭
Sunnyside, UT

A MyLupusTeam Member asked a question 💭
Aurora, ON