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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Autoimmune Hepatitis and Lupus.

A MyLupusTeam Member asked a question 💭
Melbourne, AU

I'm curious about anyone's experiences, insight or comments regarding Autoimmune Hepatitis and Lupus. I was diagnosed with Autoimmune Hepatitis 3 years ago, followed by Lupus and Fibromyalgia, a year later.

After many medications, including Prednisolone, Azathioprine, Allopurinol, Ursofalk, Methotrexate, Mycophenolate Mofetil, Plaquenil and the usual symptom medications etc. Meloxicam, Asprin etc. my liver results continue to worsen.

Not sure what I can do, other than the obvious, self-care… read more

March 28
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MyLupusTeam

How can someone manage worsening liver results while living with both autoimmune hepatitis and lupus?

Having multiple autoimmune conditions together is challenging, and you're not alone in this experience. Studies show that having one autoimmune disease puts you at higher risk for developing others, which may explain why Show Full Answer

How can someone manage worsening liver results while living with both autoimmune hepatitis and lupus?

Having multiple autoimmune conditions together is challenging, and you're not alone in this experience. Studies show that having one autoimmune disease puts you at higher risk for developing others, which may explain why autoimmune hepatitis, lupus, and fibromyalgia can occur together.

The connection between your worsening liver results and your medications is important to address. Several lupus medications can affect liver function:

* Azathioprine can cause problems with your liver and pancreas
* Methotrexate is connected to liver problems and can increase liver enzymes
* Corticosteroids like prednisolone can lead to liver issues

Because you're on multiple medications, it can be difficult to determine which ones might be contributing to your liver problems. This is exactly why tracking your symptoms and test results is so valuable.

The most important step is having an open conversation with your rheumatologist and hepatologist. They may need to:

* Run additional tests to pinpoint what's causing the liver changes
* Adjust medication doses or try different treatment options
* Coordinate care between specialists to find the safest combination for both conditions

You're already doing great with self-care, healthy eating, and weight management. Keep documenting when symptoms change so your medical team has clues about what's happening in your body.

A MyLupusTeam member with similar complex conditions shared they work with 10 specialists and added an endocrinologist to their care team, showing how important coordinated specialist care can be.

March 28

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