Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
All Resources Treatments A-Z Personal Assistant Help Center Crisis
Powered By
Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Can someone please tell me what are some important information that I should tell my doctor when I see him?

A MyLupusTeam Member asked a question 💭
Manassas, VA

I am Sympatic Lupus. ANA positive with the double strand of 2. Not sure what all of this means. I know the doctor will go over things but any input would be helpful

March 30
 · 
Reactions
A MyLupusTeam Member

Keep a journal of your symptoms, how often you feel fatigued, have pain, and how it is affecting your everyday life. Give the doctor an overview of what you have journaled. Write down all of the questions you have for the doctor. Bring both the journal and your questions with you. The visit can be overwhelming, and you might forget to ask or tell them something.

March 30
MyLupusTeam

What important information should you share with your doctor at your appointment?

Great question! Being prepared will help you make the most of your time together. Here's what to bring up:

Track and share your symptoms
- Keep a detailed record of what you're experiencing, when symptoms started, and how they affect your daily Show Full Answer

What important information should you share with your doctor at your appointment?

Great question! Being prepared will help you make the most of your time together. Here's what to bring up:

Track and share your symptoms:
- Keep a detailed record of what you're experiencing, when symptoms started, and how they affect your daily life
- Use descriptive words like "dull," "aching," or "sharp" to help your doctor understand
- Note when symptoms are worst during the day and what might trigger flare-ups
- Include information about fatigue, brain fog, joint pain, rashes, or any other concerns

Medication and side effects:
- List all current medications and supplements
- Report any side effects you're experiencing
- Mention if treatments aren't helping as expected

Impact on daily life:
- How lupus affects your work, home life, and relationships
- Mental health concerns like depression or anxiety
- Any challenges affording treatment Set your priorities:

Before your appointment, decide what matters most to you right now. Your doctor may focus on lab results, but if fatigue is what's really affecting you, make that clear. It's okay to say, "I understand my test results, but I really need to talk about my fatigue today."

Questions to ask:
- What do my ANA results mean for my treatment?
- What should I expect from medications?
- What symptoms should I watch for?
- How often should we be in contact?

Consider bringing a trusted friend or family member to help you remember what's discussed. Using a symptom tracker app or journal beforehand can help you stay focused during the appointment, especially when dealing with brain fog.

March 30

Related Questions

View All

Mycophenolate

A MyLupusTeam Member asked a question 💭
Seattle, WA
September 9, 2022

Outed by Work Colleague?

A MyLupusTeam Member asked a question 💭
San Francisco, CA
November 1, 2019

What I Want Others to Understand About Lupus
What is Your “I Have Lupus” Elevator Speech?
How do I block/unblock another member?