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Apres beaucoup de recherches le marqueur Du lupus apparaît dans la prise de sang. J ai toujours des douleurs articulaires et dans les muscles, les extrémités des doigts d une main sont devenus rouges . J'ai consulté un immunologue de l'hôpital il m'a donné le traitement plaquenil. je commence maintenant. avez-vous des expériences similaires ?

April 19
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A MyLupusTeam Member

Yes. I have Raynauds, so my fingers do get cold, turn red and at times white. Lately, I've gotten bumps on my finger tips too which likely are calcium deposits. I was given a Myomarker Panel, and did have overlapping Sjogrens and Sclerosis which explains my reflux dysphagia, and dismotility in my digestive tract too. The panel also diagnosed dermatomyositis, which explains a lot of my inflammation and muscle pain. I hope you feel better soon.

April 23
A MyLupusTeam Member

En plus du lupus, j'ai aussi développé le syndrome de Raynaud : le bout de mes doigts devient rouge ou blanc et la circulation sanguine est mauvaise. Cela varie probablement d'une personne à l'autre, mais chez moi, le facteur déclenchant est généralement l'alimentation. Si je mange quelque chose qui provoque une inflammation, cela s'accompagne souvent du syndrome de l'intestin irritable, puis du syndrome de Raynaud, puis de tremblements et d'agitation, et enfin d'une déshydratation chronique. Si aucun autre symptôme plus grave ne se déclenche, je considère que c'est un jour de chance. J'apprends encore à gérer mon problème, mais les deux choses les plus importantes que j'ai apprises sont l'importance de surveiller attentivement mon alimentation et mon mode de vie. Bonne chance !

April 19
MyLupusTeam

Are you experiencing joint and muscle pain with red fingertips after starting Plaquenil for lupus?

Yes, many MyLupusTeam members share similar experiences with joint and muscle pain as primary lupus symptoms. The redness in your fingertips could be related to Raynaud's phenomenon, which affects up to a third of people with Show Full Answer

Are you experiencing joint and muscle pain with red fingertips after starting Plaquenil for lupus?

Yes, many MyLupusTeam members share similar experiences with joint and muscle pain as primary lupus symptoms. The redness in your fingertips could be related to Raynaud's phenomenon, which affects up to a third of people with lupus and causes circulation issues in fingers and toes.

A MyLupusTeam member described: "My lupus presents itself primarily in my joints, which makes things like opening a can or walking across the room much more difficult than normal."

About your Plaquenil treatment:

When starting new lupus medications, it's helpful to ask your doctor:
* What should I expect from this medication?
* What are the next few weeks to months going to look like?
* What symptoms should I monitor?

The initial months after diagnosis can be challenging, but tracking your symptoms over time will help you and your doctor understand how the treatment is working.

About the red fingertips:

If your fingers turn white, red, or purplish, especially in cold temperatures, mention this to your doctor. This could indicate Raynaud's, which is common with lupus and needs proper management.

April 19

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