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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question 💭
Swansea, UK

I am back as I believe i have lupus somewhere. I am getting the malar rash daily with white skin around the eyes. My mouth and nose dries up constantly also. My joints are in pain most the days. As my left hand tend to get intense sharp pains in the joints that feels like cramping or some sort. My dsdna levels were high 2 years ago but rheumatology sent me away. I have fibromyalgia and currently waiting on endometriosis diagnosis

April 27
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A MyLupusTeam Member

For my daughter, it was the unexplained fevers, and with that came the butterfly rash. Lupus comes differently for everybody but keep going and pushing for a second opinion!

Has your rheumatologist given you an ANA (Anti-nuclear Antibody) test?

April 27 (edited)
A MyLupusTeam Member

I have random jointpain more so now than ever. Unable to stay asleep at night so sleeping in the day unintentionally xx

April 29
A MyLupusTeam Member

I experienced joint pain and heart palpitations to receive a confirmed diagnosis

April 28
A MyLupusTeam Member

I had all the tests like that the only one that was elevated was the DSDNA which sparks lupus but I am fighting still for a second opinion

April 27
A MyLupusTeam Member

I seen two rheumatologist and one said he was able to see the lupus symptoms and then the original one i was referred too didnt give me a chance he was really rude he didnt want to know. Just said I was in pain because I am double jointed. He sent me back to the gp. I been fighting with them ever sonce dor a second opinion xx

April 27

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