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I've been trying to take LDN for a little over a month now, but I'm not sure how much to take. Anyone here know how much to take in a day?

A MyLupusTeam Member asked a question 💭
Tyrone, PA
May 2
 · 
Reactions
A MyLupusTeam Member

Hopefully those symptoms will cease as your body gets used to the medication and dose. I used to take mine in the morning to help curb some of the vivid dreaming too.

May 5
A MyLupusTeam Member

Well, my Rheumatologist started me with 4.5 MG right away. I think it's too much and has aggravated the joint by big toe on my right foot. It's so painful I can barely walk or stand wearing shoes or slippers. I'm going to see my podiatrist on Wednesday for my wound care treatment on my heel of the same foot. I'm hoping he will give me an injection or a prescription to help it go away. What a mess! Just hoping for some relief.

May 4
A MyLupusTeam Member

When I took it, I started at 1.5 mg then when up to 4.5 mg. It really helped with pain. My Internist wants me to go back on it after they decide which medicine to settle on to treat Dermatomyocitus.

May 4
MyLupusTeam

Low dose naltrexone (LDN) is something a number of people with lupus have explored, but it's not a standard approved treatment for lupus, which makes dosing a bit tricky to nail down without professional guidance.

LDN dosing can vary quite a bit from person to person, and getting it wrong could interact with other lupus Show Full Answer

Low dose naltrexone (LDN) is something a number of people with lupus have explored, but it's not a standard approved treatment for lupus, which makes dosing a bit tricky to nail down without professional guidance.

LDN dosing can vary quite a bit from person to person, and getting it wrong could interact with other lupus medications. This is really one of those questions best directed to a rheumatologist, who can tailor the dose specifically to your situation and current medication regimen.

A few important things to keep in mind:

- LDN can interact with immunosuppressants, which many people with lupus take
- Starting doses are typically very low and gradually increased
- What works for one person may not work for another
- Your other lupus medications need to be factored in

It's worth having an open conversation with your rheumatologist before adjusting anything. As one MyLupusTeam member wisely put it, working closely with your rheumatologist is key because mixing or adjusting remedies without guidance can sometimes be more risky than helpful. 💙

May 2

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