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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
May 13
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MyLupusTeam

It's completely understandable to feel scared — hair loss can be really distressing, especially when it's new after so many years. The good news is there are things that can help, and hair loss from lupus is often treatable.

First, it's really important to talk to your rheumatologist as soon as possible. Hair loss can be Show Full Answer

It's completely understandable to feel scared — hair loss can be really distressing, especially when it's new after so many years. The good news is there are things that can help, and hair loss from lupus is often treatable.

First, it's really important to talk to your rheumatologist as soon as possible. Hair loss can be triggered by a lupus flare, a medication side effect, or both. Getting your lupus under better control is often the most effective way to slow or stop the hair loss. Here are some treatment options your doctor might discuss with you:

- Topical steroids (like clobetasol) can help hair regrow faster
- Injectable steroids into the scalp have helped some people
- DHEA (a hormone) may be prescribed to address lupus symptoms including hair loss — note this is not recommended for men with lupus
- Mycophenolate may be used to improve skin and hair loss symptoms
- If a medication is causing the loss, adjusting your treatment plan may reverse it within a few months While waiting to see your doctor, here are some gentle hair care tips to reduce further loss:

- Use mild shampoo, like baby shampoo
- Avoid heat styling tools and chemical treatments
- Keep hairstyles loose — no tight braids or buns
- Protect your scalp from sun exposure
- Try coconut oil as a conditioner to reduce breakage

Some MyLupusTeam members have also found biotin (vitamin B7) or folic acid supplements helpful, but always check with your rheumatologist before starting anything new, as some supplements can interact with lupus medications.

May 13

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