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us and dialed 112, the German telephone number for emergency medical services. One of the passengers happened to be an Emergency Doctor, he quickly accessed me, wanted me to lie down immediately, tried to persuade his wife and three kids to leave the bus, he tried to remain calm, but I could sense him panicking after he asked all sorts of questions, he clearly saw me on the ground requiring reanimation. He paced the bus nervously, asking more questions, checking my pulse, which wasn't good. He… read more

May 30
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Answer Summary

Members rallied around a community member who shared a frightening pre-syncope episode on a bus in Germany, followed by ongoing... Read more

Members rallied around a community member who shared a frightening pre-syncope episode on a bus in Germany, followed by ongoing hospitalizations involving T-wave inversions, very low blood pressure, anemia, and complex symptoms being investigated for lupus, scleroderma, and other conditions. Several members offered emotional support through prayers, encouragement, and warm messages, while one member shared practical tips about staying hydrated before blood draws, using warm packs on veins, and asking for ultrasound-guided draws. A recurring theme was deep admiration for her strength, with many calling her a warrior and expressing hope that she finds answers and relief soon.

MyLupusTeam

What an incredibly frightening experience — and honestly, the fact that an emergency doctor just happened to be on that bus sounds like the universe was looking out for you. Let's break this down.

What are T-wave inversions?

Your heart's electrical activity is recorded in waves on an EKG. The "T-wave" represents your heart Show Full Answer

What an incredibly frightening experience — and honestly, the fact that an emergency doctor just happened to be on that bus sounds like the universe was looking out for you. Let's break this down.

What are T-wave inversions?

Your heart's electrical activity is recorded in waves on an EKG. The "T-wave" represents your heart muscle relaxing between beats. When that wave flips the wrong way (inverts), it can signal that the heart muscle isn't getting enough blood flow or oxygen, or that there's inflammation around the heart — both of which are relevant concerns with lupus.

T-wave inversions aren't a diagnosis on their own, but they're a red flag that something needs investigating. Why the nausea, weakness, and near-fainting?

With lupus, the heart and its surrounding tissue can become inflamed — this is called pericarditis or myocarditis, and it's a known lupus complication. When the heart isn't pumping efficiently, the body responds with:

- Weakness and fatigue
- Nausea
- Dizziness or pre-syncope (near-fainting)
- Decreased alertness

This is why your admission was absolutely the right call. Can it be treated?

Yes, depending on the underlying cause. Treatment options may include:

- Medications — such as anti-inflammatories, steroids, or adjustments to your lupus treatment plan
- Cardiac medications — to support heart rhythm or blood flow
- In some cases, procedures — if a structural issue is identified

The key next step is working closely with both a cardiologist and your rheumatologist together, since lupus-related cardiac issues need both perspectives.

Please make sure your rheumatologist is fully informed about this episode and the EKG findings — this needs to be part of your ongoing lupus management going forward.

May 30
A MyLupusTeam Member

Prayers , im glad ER doctor was in the the right place at the right time? How are you doing now

May 31
A MyLupusTeam Member

How are you doing now?

May 31
A MyLupusTeam Member

I pray that you are doing better and that the doctors are still working on your recovery 💐🙏🏾💕

May 31
A MyLupusTeam Member

That's scary!! How are you feeling today?

May 31

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