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Was autoimmune related, would this not help my symptoms? Actually they are worse which I need to check blood sugar to see if this is the problem. I don’t have anything to check that with. I have no other symptoms of high blood sugar right now. I really want to know source of neuropathy in order to get correct treatment. I figured that much prednisone would help if related to my UCTD.

July 23
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A MyLupusTeam Member

Finding the source of neuropathy can be extremely difficult! Blood sugar is usually the first thing they test. My neurologist finally did an EMG and figured out that my nerve sheaths in my lower legs were being destroyed. He diagnosed me with CIDP. Chronic Inflammatory Demyelinating Polyneuropathy!!

To treat this, I get a monthly IVIG infusion.

July 23
A MyLupusTeam Member

I’m going to buy one of those meters tomorrow and check my sugar

July 23
A MyLupusTeam Member

You need to get a small meter, nothing expensive and keep a watch on your blood sugar. If you are not a diabetic you should be ok, but if you are a diabetic or pre-diabetic, then you definitely need to watch it closely while on Prednisone. Call rheumatologist if not helping neuropathy pain, he/she needs to change med. Praying for you.

July 23
A MyLupusTeam Member

That’s my experience as well. Neuropathy is a challenge. Neurontin helps some people, didn’t do anything for me. Wish I had a better answer. Sometimes short bursts of cold water-not ice, gives me a bit of relief. Good luck♥️

July 23
MyLupusTeam

That's a really important observation, and it makes sense to want to understand what's driving the neuropathy before assuming the treatment is working or not.

Prednisone is a strong anti-inflammatory that can help with autoimmune-related symptoms. However, it doesn't always resolve every symptom, even when the cause is Show Full Answer

That's a really important observation, and it makes sense to want to understand what's driving the neuropathy before assuming the treatment is working or not.

Prednisone is a strong anti-inflammatory that can help with autoimmune-related symptoms. However, it doesn't always resolve every symptom, even when the cause is autoimmune. Response can vary depending on the type and severity of nerve involvement. The concern about blood sugar is very valid. Prednisone is known to raise blood sugar levels, and elevated blood sugar can itself worsen nerve-related symptoms. This is worth flagging urgently with your doctor, especially since you don't currently have a way to test at home.

Some key points to bring to your care team:

- Prednisone can raise blood sugar even without obvious symptoms
- Worsening neuropathy symptoms while on prednisone could point to blood sugar as a contributing factor
- Your doctor can order a blood sugar test to rule this out
- Identifying the root cause of the neuropathy is essential for getting the right treatment It's really worth reaching out to your doctor soon to discuss the worsening symptoms and request blood work. Don't wait on this one — your instincts here are good, and getting clarity on the cause is the right next step.

July 23

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New Orleans, LA