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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
September 17
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A MyLupusTeam Member

If you are referring to arthritis, many of us have some form of it. I have it in my hips, knees, hands, and feet. Just know that you are not alone.

September 17
MyLupusTeam

It sounds like you're dealing with a lot of pain and physical limitations β€” arm, neck, and back issues that are making it hard to walk or even stand in one place. That's really tough, and you're definitely not alone in this.

Many people living with lupus experience similar struggles. In a survey of MyLupusTeam members Show Full Answer

It sounds like you're dealing with a lot of pain and physical limitations β€” arm, neck, and back issues that are making it hard to walk or even stand in one place. That's really tough, and you're definitely not alone in this.

Many people living with lupus experience similar struggles. In a survey of MyLupusTeam members, nearly everyone reported joint pain and swelling, and over 80% reported muscle pain. Numbness and tingling in the arms and hands is also very common. Lupus-related inflammation can affect nerves, muscles, and joints throughout the body, which can explain the kind of widespread breakdown you're describing. Some possible lupus-related causes include:

- Peripheral neuropathy β€” nerve damage from inflammation causing numbness, tingling, or weakness in the arms
- Joint inflammation β€” causing pain and stiffness in the neck and back
- Reduced blood flow to bones β€” which can cause pain and limit mobility

The most important step right now is to report all of these symptoms to your rheumatologist as soon as possible, especially since they seem to be worsening. They can run tests, check imaging, and put together a treatment plan tailored to you.

Physical therapy is also something worth asking about β€” it's often recommended for people with lupus to help improve mobility and overall quality of life.

September 17

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