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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
September 22
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A MyLupusTeam Member

My. Rheumatologist missed my condition for 16 years! Then she lied about it, when my new pcp diagnosed me 2 weeks before I had the appointment I had her appointment.. When I caught the lie,she didn't know what to say. I didn't go back to her. Ssoo I don't have a new doc..I found things on the internet. Thanks for listening.😭🥰

September 22
MyLupusTeam

Managing chilblain lupus with fevers and skin shedding can feel overwhelming, but there are steps that can help. These symptoms are likely connected to lupus-related inflammation and possibly flares or infections.

For the chilblains and skin issues, protecting yourself from cold is key:

- Wear thick, warm socks and protective Show Full Answer

Managing chilblain lupus with fevers and skin shedding can feel overwhelming, but there are steps that can help. These symptoms are likely connected to lupus-related inflammation and possibly flares or infections.

For the chilblains and skin issues, protecting yourself from cold is key:

- Wear thick, warm socks and protective footwear
- Keep your living and work spaces warm
- Soak feet in warm water to help circulation
- Exercise gently to maintain body temperature
- Avoid smoking, as nicotine restricts blood flow

For moderate to severe chilblain lupus, a doctor may prescribe corticosteroids or immunosuppressants to calm the immune response causing skin damage. Regarding the fevers, it's really important to figure out whether they're caused by a lupus flare or an infection, as the treatment differs.

- Fevers below 101°F are common with lupus flares and often respond to acetaminophen or NSAIDs
- If fever rises above 101°F or won't go away, seek medical attention right away
- Immunosuppressant medications can increase infection risk, so always keep your doctor informed of new or worsening symptoms

Talking openly with your rheumatologist about all of these symptoms together — the fevers, skin shedding, and chilblains — will help them tailor the best treatment plan for you.

September 22

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