The viruses are worse than any side-effects I ever had. I had one day of discomfort, aches/shivers, from the COVID and flu vaccines. Getting COVID had me out for weeks and wishing I was dead. I got sepsis from the flu. A vaccine never even precipitated a flare with me.
October 14
I'm having a lot of boosters,flu,hepatitis b,herpes,shingles all given by Spanish health system. Covid is there too but I'm very unsure wether to have because side effects
October 14
I got mine, fully covered by insurance, at CVS pharmacy, along with the flu vaccine. I wish they had vaccines for rhinovirus and norovirus. I just had both which caused horrible lupus flare ups.
October 14
Great question! COVID-19 vaccines are strongly recommended for people living with lupus. Health experts, including the Lupus Foundation of America and the American College of Rheumatology, agree that staying up to date with COVID-19 vaccines is the best way to reduce the risk of serious illness, hospitalization, and long Show Full Answer
Great question! COVID-19 vaccines are strongly recommended for people living with lupus. Health experts, including the Lupus Foundation of America and the American College of Rheumatology, agree that staying up to date with COVID-19 vaccines is the best way to reduce the risk of serious illness, hospitalization, and long COVID.
Here are some key things to know:
- Vaccines are safe — They are not live vaccines and cannot cause COVID-19. They are considered safe for people with autoimmune conditions like lupus.
- You may need extra doses — If you are moderately or severely immunocompromised, your doctor may recommend additional doses beyond the standard schedule.
- Timing matters — Your doctor may suggest getting vaccinated when your lupus is more stable, or temporarily adjusting certain medications to help your body respond better to the vaccine.
- Updated boosters are available — The 2025-2026 season vaccines have been updated to target the LP.8.1 strain and should be given at least two months after your last COVID-19 shot. It's always best to talk with your lupus care team about the right timing and which vaccine option suits your treatment plan. If you're taking voclosporin (Lupkynis) for lupus nephritis, make sure to mention this, as it can interact with certain COVID-19 treatments like Paxlovid.
October 13