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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Is it normal that I'm tired all the time

A MyLupusTeam Member asked a question 💭
Mexico, NY
October 15
 · 
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A MyLupusTeam Member

As @A MyLupusTeam Member said, a rheumatologist manages lupus. If you have a primary care doctor, request a referral to see a rheumatologist.

October 15
A MyLupusTeam Member

Lupus fatigue is our most common problem. I am tired 25/7, but some days are better than others. Make sure to take breaks between your activities and keep your schedule light when big events are planned. Don't hesitate to ask for help. No matter how tired you are, believe it or not, a short walk gives you a spurt of energy.

October 15
A MyLupusTeam Member

Yes you need to see a rheumatologist that deals with autoimmune conditions. They usually start you off with the hydroxychloroquine medication. Also Prednisone possibly. I've tried several other medications, but haven't been able to tolerate any of them. Hope you find a good doctor! Take care

October 15
A MyLupusTeam Member

Is there a specific kind of doctor for lupus or a specific treatment that you take daily like a medication or injection or anything like that because I feel like my doctor is just going around it because I have so much going on right now

October 15
MyLupusTeam

Feeling tired all the time with lupus is incredibly common — so yes, unfortunately, it's very "normal" for lupus. Between 67% and 90% of people with lupus report chronic fatigue, and many describe it as their most bothersome symptom, even more than joint pain or skin issues. Lupus fatigue is different from everyday Show Full Answer

Feeling tired all the time with lupus is incredibly common — so yes, unfortunately, it's very "normal" for lupus. Between 67% and 90% of people with lupus report chronic fatigue, and many describe it as their most bothersome symptom, even more than joint pain or skin issues. Lupus fatigue is different from everyday tiredness. It can persist no matter how much rest you get and can affect you physically, mentally, and emotionally. It often gets worse during a flare.

Several things can contribute to it, including:

- Disease activity — your body uses extra energy fighting inflammation
- Pain — which can disrupt sleep and reduce activity
- Depression or anxiety — both common with lupus and linked to fatigue
- Comorbidities — like hypothyroidism or fibromyalgia It's really worth bringing up with your doctor, especially if it's affecting your quality of life. Try rating your fatigue on a scale of 1–10 and giving examples of how it impacts your daily activities — that can help your doctor find the best approach for you.

October 15

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