Did your doctor check your urinalysis and urine protein/creatinine? This is very important to ensure you're not developing lupus nephritis, which can sneak up on us. C3 and C4 help indicate disease activity and are worth checking periodically, like every six months. If your doctor hasn't been monitoring your urine studies regularly (the best early indicator of kidney involvement), they may not have much experience with lupus. Some rheumatologists check anti-dsDNA regularly (like yearly), as it indicates the risk of kidney and central nervous system involvement.

I don't agree with the AI answer, as there's no point in repeating the ANA every six months once you're known to have lupus. The lipids also don't need to be checked that often.

@A MyLupusTeam Member Thanks for that necessary information. I did contact my provider but have not heard back yet. I will definitely go and reread your story, thank you again for sharing all of your knowledge here for us! Have a good night! 💖🙏🏻

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A MyLupus...

You're welcome.

The urine protein/creatinine is especially critical, as it's the FIRST indicator of a possible kidney flare, even with a normal UA.

I have written a lot more about navigating the healthcare system and managing our care if you want to check out my story, Kim.💜

@A MyLupusTeam Member Thank you so much for the detailed response. No, the rheumatologist hasn't mentioned anything about urine tests, though I believe they may have been done prior at my PCP, which will be a year in November. I was going to get the bloodwork done this week, now I think I may call and see if she could have these tests (urine, c3, c4, and anti-dsDNA) added to the order first. Thank you again, always appreciate your medical insight! 🫂🩷

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A MyLupus...