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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question 💭
Marysville, OH

It is suppose to help me wean off of prednisone. I am down to 16 mg. so far. I would love to be able to stop taking steroids..

September 15, 2014 (edited)
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A MyLupusTeam Member

I just started Acthar. I am trying to get off steroids. Having so many problems with my long term steroid use.

June 13, 2015
A MyLupusTeam Member

I cannot take any form of prednisone because it has thinned my bones so bad two years ago I broke both my hips 7 months apart ... Geez that was a NIGHTMARE

April 7, 2018
A MyLupusTeam Member

I used it for 2 months- April and May 2014. It didn't help so I asked my MD to switch me back to Prednisone. I heard Acthar costs the insurance company too much money. When I did my research, I just didn't feel right that it would cost that much, evenb though my copay is just $100/month.

Yes, Acthar replaces steroids.

September 28, 2014 (edited)

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