Also Krystal so true about the sun and nobody understanding what it does to our insides especially if it’s extra hot.
I had that problem too with my friends. I’m pretty much a vampire now. Only come out when the sun goes down.
But like you a didn’t worry too much about it either. I just told them they were sunshine girls and beach barbies and I’m a vampire.😂

Be patience with your family and let them know each and time you are sick and in pain. Then they will see the for themselves that you are sick. Let them see your doctors report.

It’s frustrating, they don’t understand! It’s all over pain

I have a best friend since 8th grade and she never understands anything I tell her, she says I don’t see you sick or sometimes doesn’t even ask how I’m doing so I don’t really reach out to her as much.
I appreciate the prayers thank you and you are also a strong person

I know how it is when people don't understand. For me, it's my family who is so clueless even tho I've explained numerous times, they simply don't WANT to understand and my illness is a bother to them. But I'm incredibly grateful for a caring church and a group of supportive friends who are awesome! I just simply do not discuss my health with family, I get weary of being doubted and my test results dismissed by them. I know it's hard, but please know you're supported here and I'm praying for you!