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Every time I hurt, I get soooooo cold.
It doesn't matter if it is 90 degrees outside.
What do you do for it.

March 18, 2025
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A MyLupusTeam Member

each person is different but I always carry heat packs in my purse

March 19, 2025
MyLupusTeam

Feeling extremely cold during lupus flares is a common experience. During flares, the immune system goes into overdrive, causing inflammation and releasing chemicals that can affect body temperature regulation. Many people with lupus report needing multiple blankets even when the weather is warm.

The chills tend to be worse Show Full Answer

Feeling extremely cold during lupus flares is a common experience. During flares, the immune system goes into overdrive, causing inflammation and releasing chemicals that can affect body temperature regulation. Many people with lupus report needing multiple blankets even when the weather is warm.

The chills tend to be worse when lupus is active, and they typically affect your whole body rather than just one area. This can happen regardless of the outside temperature. To manage these symptoms:
- Take your prescribed lupus medications as directed
- Get plenty of rest during flares
- Use warm blankets or heating pads
- Wear warm, layered clothing
- Drink warm beverages
- Stay indoors in temperature-controlled environments when possible

If you're experiencing persistent temperature regulation issues, it's important to discuss this with your doctor, as they may need to adjust your treatment plan.

March 18, 2025
A MyLupusTeam Member

It's 60 degrees and high winds here in north central Texas, but I'm in a flare and am freezing. I'm also hurting in my joints and have ulcers in my mouth nose and stomach. I feel for you! I use several heating pads for the areas of worst pain. Plus I'm dressed for cold weather and under the covers.
Dawn

March 21, 2025 (edited)
A MyLupusTeam Member

I carry my heating pad to work everyday. I bought a new one and it was not working so well so now I take my old reliable one with me everyday. I don’t like being uncomfortable and I also have my coat all year! I don’t like being uncomfortable but I don’t want to make others around me uncomfortable either.

March 20, 2025
A MyLupusTeam Member

Oh yes I experience it too. Can't stand to be cold. I try to layer up and I have to keep my feet warm.💜

March 19, 2025

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